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1. Biomedical articles (top 50; 2010 to 2015)
1. |||||||||. 100%  Bird S: Advance care planning. Aust Fam Physician; 2014 Aug;43(8):526-8
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning.
  • BACKGROUND: Good Medical Practice: A Code of Conduct for Doctors in Australia states that in caring for patients towards the end of their life, good medical practice involves facilitating advance care planning.
  • OBJECTIVE: This article discusses the role of advance care planning in end-of-life care, with an emphasis on the ethical and legal framework for advance care directives.
  • DISCUSSION: There has been an increased focus on advanced care planning and advance care directives in Australia, partly driven by the ageing population and technological advances, as well as the principle of patient-centred care.
  • General practitioners have an important role in initiating and facilitating advance care planning.

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  • (PMID = 25114986.001).
  • [ISSN] 0300-8495
  • [Journal-full-title] Australian family physician
  • [ISO-abbreviation] Aust Fam Physician
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] Australia
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2. |||||||||. 87%  Lee TJ: Discussing advance care planning with elderly patients. N C Med J; 2014 Sep-Oct;75(5):347-51
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Discussing advance care planning with elderly patients.
  • Advance care planning maximizes the patient's chances of receiving the care he or she wants and minimizes confusion.
  • This article discusses the important components of advance care planning and the recommended documentation.
  • [MeSH-major] Advance Care Planning. Physician-Patient Relations


3. ||||||||.. 85%  Billings JA: The need for safeguards in advance care planning. J Gen Intern Med; 2012 May;27(5):595-600
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] The need for safeguards in advance care planning.
  • The recent uproar about Medicare "death panels" draws attention to public and professional concerns that advance care planning might restrict access to desired life-sustaining care.
  • The primary goal of advance care planning is to promote the autonomy of a decisionally incapacitated patient when choices about life-sustaining treatments are encountered, but the safety of this procedure has not received deserved scrutiny.
  • Patients often do not understand their decisions or they may change their mind without changing their advance care directives.
  • A few recent reports show encouraging outcomes from advance care planning, but most studies indicate that the procedure is ineffective in protecting patients from unwanted treatments and may even undermine autonomy by leading to choices that do not reflect patient values, goals, and preferences.
  • Safeguards for advance care planning should be put in place, such as encouraging physicians to err on the side of preserving life when advance care directives are unclear, requiring a trained advisor to review non-emergent patient choices to limit life-sustaining treatment, training of clinicians in conducting such conversations, and structured discussion formats that first address values and goals rather than particular life-sustaining procedures.
  • Key targets for research include: how to improve completion rates for person wanting advance care directives, especially among minorities; more effective and standardized approaches to advance care planning discussions, including how best to present prognostic information to patients; methods for training clinicians and others to assist patients in this process; and systems for assuring that directives are available and up-to-date.
  • [MeSH-major] Advance Care Planning. Decision Making. Terminal Care
  • [MeSH-minor] Advance Directives. Communication. Humans. Life Support Care. Physician-Patient Relations

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  • (PMID = 22237664.001).
  • [ISSN] 1525-1497
  • [Journal-full-title] Journal of general internal medicine
  • [ISO-abbreviation] J Gen Intern Med
  • [Language] eng
  • [Publication-type] Journal Article; Review
  • [Publication-country] United States
  • [Other-IDs] NLM/ PMC3326115
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4. ||||||||.. 81%  Levi BH, Dellasega C, Whitehead M, Green MJ: What influences individuals to engage in advance care planning? Am J Hosp Palliat Care; 2010 Aug;27(5):306-12
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] What influences individuals to engage in advance care planning?
  • BACKGROUND: Advance care planning (ACP) is an underutilized process that involves thinking about what kind of life-prolonging medical care one would want should the need arise, identifying a spokesperson, and then communicating these wishes.
  • CONCLUSIONS: The motivations for undertaking ACP that we have identified offer health care providers insight into effective strategies for facilitating the process of ACP with their patients.
  • [MeSH-major] Advance Care Planning. Advance Directives / psychology. Attitude to Health. Decision Making. Quality of Life / psychology
  • [MeSH-minor] Activities of Daily Living. Aged. Aged, 80 and over. Anecdotes as Topic. Female. Focus Groups. Humans. Male. Middle Aged. Patient Education as Topic. Pennsylvania. Questionnaires. Self Care / methods

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  • (PMID = 20103783.001).
  • [ISSN] 1938-2715
  • [Journal-full-title] The American journal of hospice & palliative care
  • [ISO-abbreviation] Am J Hosp Palliat Care
  • [Language] eng
  • [Grant] United States / NINR NIH HHS / NR / R21 NR-008539-01; United States / NINR NIH HHS / NR / R21 NR008539
  • [Publication-type] Journal Article; Research Support, N.I.H., Extramural
  • [Publication-country] United States
  • [Other-IDs] NLM/ NIHMS490141; NLM/ PMC3766750
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5. ||||||||.. 81%  Yung VY, Walling AM, Min L, Wenger NS, Ganz DA: Documentation of advance care planning for community-dwelling elders. J Palliat Med; 2010 Jul;13(7):861-7
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Documentation of advance care planning for community-dwelling elders.
  • BACKGROUND: Advance planning for end-of-life care has gained acceptance, but actual end-of-life care is often incongruent with patients' previously stated goals.
  • We assessed the flow of advance care planning information from patients to medical records in a community sample of older adults to better understand why advance care planning is not more successful.
  • METHODS: Our study used structured interview and medical record data from community-dwelling older patients in two previous studies: Assessing Care of Vulnerable Elders (ACOVE)-1 (245 patients age > or = 65 years and screened for high risk of death/functional decline in 1998-1999) and ACOVE-2 (566 patients age > or = 75 who screened positive for falls/mobility disorders, incontinence, and/or dementia in 2002-2003).
  • We compared interview data on patients' preferences, advance directives, and surrogate decision-makers with findings from the medical record.
  • RESULTS: In ACOVE-1, 38% of surveyed patients had thought about limiting the aggressiveness of medical care; 24% of surveyed patients stated that they had spoken to their doctor about this.
  • Among patients who reported that they had completed an advance directive and had given it to their health-care provider, 15% (ACOVE-1) and 47% (ACOVE-2) had advance directive information in the medical record.
  • Among patients who had not completed an advance directive but had given surrogate decision-maker information to their provider, 0% (ACOVE-1) and 16% (ACOVE-2) had documentation of a surrogate decision-maker in the medical record.
  • CONCLUSIONS: Community-dwelling elders' preferences for end-of-life care are not consistent with documentation in their medical records.
  • Electronic health records and standardized data collection for end-of-life care could begin to ameliorate this problem.
  • [MeSH-major] Advance Care Planning / standards. Advance Directive Adherence. Documentation / standards. Frail Elderly
  • [MeSH-minor] Aged. Aged, 80 and over. California. Female. Humans. Independent Living. Male. Managed Care Programs. Medical Records. Patient Preference. Quality of Health Care

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  • (PMID = 20618087.001).
  • [ISSN] 1557-7740
  • [Journal-full-title] Journal of palliative medicine
  • [ISO-abbreviation] J Palliat Med
  • [Language] eng
  • [Grant] United States / NIA NIH HHS / AG / K12 AG001004; United States / AHRQ HHS / HS / R21 HS017621-01; United States / BHP HRSA HHS / PE / T32 PE19001
  • [Publication-type] Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, Non-P.H.S.; Research Support, U.S. Gov't, P.H.S.
  • [Publication-country] United States
  • [Other-IDs] NLM/ PMC2939845
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6. ||||||||.. 81%  McMahan RD, Knight SJ, Fried TR, Sudore RL: Advance care planning beyond advance directives: perspectives from patients and surrogates. J Pain Symptom Manage; 2013 Sep;46(3):355-65
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning beyond advance directives: perspectives from patients and surrogates.
  • CONTEXT: Advance care planning (ACP) has focused on documenting life-sustaining treatment preferences in advance directives (ADs).
  • [MeSH-major] Advance Care Planning / organization & administration. Advance Care Planning / statistics & numerical data. Attitude to Death. Attitude to Health. Decision Making. Patients / statistics & numerical data. Proxy / statistics & numerical data

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  • [Copyright] Published by Elsevier Inc.
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  • (PMID = 23200188.001).
  • [ISSN] 1873-6513
  • [Journal-full-title] Journal of pain and symptom management
  • [ISO-abbreviation] J Pain Symptom Manage
  • [Language] eng
  • [Grant] United States / NIA NIH HHS / AG / P30 AG044281
  • [Publication-type] Journal Article; Multicenter Study; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, Non-P.H.S.
  • [Publication-country] United States
  • [Other-IDs] NLM/ NIHMS591675; NLM/ PMC4111444
  • [Keywords] NOTNLM ; Advance directives / aging / decision making / qualitative research
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7. ||||||||.. 84%  Wagemans AM, van Wijmen FC: [Advance care planning for people with intellectual disability]. Ned Tijdschr Geneeskd; 2014;158(0):A8433
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] [Advance care planning for people with intellectual disability].
  • [Transliterated title] Advance care planning.
  • A useful aid to proactive medical management is advance care planning.
  • This is a long-term care plan which is centred on the well-being of patients and their quality of life.
  • Ideally it should be a matter for patients and those closest to them, the responsible medical practitioner and those tasked with the day-to-day care of patients.

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  • (PMID = 25424633.001).
  • [ISSN] 1876-8784
  • [Journal-full-title] Nederlands tijdschrift voor geneeskunde
  • [ISO-abbreviation] Ned Tijdschr Geneeskd
  • [Language] dut
  • [Publication-type] English Abstract; Journal Article
  • [Publication-country] Netherlands
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8. ||||||||.. 84%  Cairns R: Advance care planning: thinking ahead to achieve our patients' goals. Br J Community Nurs; 2011 Sep;16(9):427
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  • [Title] Advance care planning: thinking ahead to achieve our patients' goals.
  • The End of Life Care Strategy for England describes advance care planning (ACP) as a 'voluntary process of discussion about future care...concerns and wishes...values or personal goals for care, their understanding of their illness and prognosis...wishes for types of care or treatment and the availability of these' (Department of Health (DH), 2008).
  • [MeSH-major] Advance Care Planning
  • [MeSH-minor] Community Health Nursing. Great Britain. Humans. Palliative Care

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  • (PMID = 22067950.001).
  • [ISSN] 1462-4753
  • [Journal-full-title] British journal of community nursing
  • [ISO-abbreviation] Br J Community Nurs
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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9. ||||||||.. 82%  Janssen DJ, Spruit MA, Schols JM, van der Sande FM, Frenken LA, Wouters EF: Insight into advance care planning for patients on dialysis. J Pain Symptom Manage; 2013 Jan;45(1):104-13
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  • [Title] Insight into advance care planning for patients on dialysis.
  • CONTEXT: Advance care planning is not included in regular clinical care for patients on dialysis.
  • Insight into life-sustaining treatment preferences and communication about end-of-life care is necessary to develop interventions to improve advance care planning for patients on dialysis.
  • OBJECTIVES: This cross-sectional observational study aimed to understand the preferences for life-sustaining treatments of outpatients on dialysis and to study the quality of patient-physician communication about end-of-life care and barriers and facilitators to this communication.
  • METHODS: The following outcomes were assessed in 80 clinically stable dialysis patients: demographics, clinical characteristics, life-sustaining treatment preferences (cardiopulmonary resuscitation and mechanical ventilation, and Willingness to Accept Life-Sustaining Treatment instrument), preference for site of death, quality of communication (Quality of Communication Questionnaire), and barriers and facilitators to communication about end-of-life care (Barriers and Facilitators Questionnaire).
  • Quality of the patient-physician communication about end-of-life care was rated poor.
  • This study identified several barriers and facilitators to end-of-life care communication.
  • Quality of patient-physician communication about end-of-life care needs to improve.
  • Barriers and facilitators to communication about end-of-life care provide direction for future interventions to facilitate advance care planning for patients on dialysis.
  • [MeSH-major] Advance Care Planning. Advance Directives. Dialysis. Physician-Patient Relations. Terminal Care


10. ||||||||.. 81%  Dempsey D: Advance care planning for people with dementia: benefits and challenges. Int J Palliat Nurs; 2013 May;19(5):227-34
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  • [Title] Advance care planning for people with dementia: benefits and challenges.
  • Advance care planning (ACP) is a process being championed within health and social care, particularly since the publication of the UK Department of Health's 2008 End of Life Care Strategy.
  • However, its implementation in dementia care is yet to be fully realised and can pose significant ethical and legal dilemmas for the generic and specialist workforce, the patient themselves, and their family or loved ones.
  • [MeSH-major] Advance Care Planning. Dementia / therapy. Palliative Care

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  • (PMID = 23971306.001).
  • [ISSN] 1357-6321
  • [Journal-full-title] International journal of palliative nursing
  • [ISO-abbreviation] Int J Palliat Nurs
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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11. ||||||||.. 81%  Heckford E, Beringer AJ: Advance care planning: challenges and approaches for pediatricians. J Palliat Med; 2014 Sep;17(9):1049-53
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  • [Title] Advance care planning: challenges and approaches for pediatricians.
  • BACKGROUND: There is increasing recognition of the value of advance care planning for children with life-limiting conditions.
  • OBJECTIVE: Our aim was to review advance care planning for children with life-threatening or life-limiting conditions (LTLLCs) in our local area.
  • Study subjects were from two National Health Service (NHS) Trusts in Bristol in the United Kingdom.
  • Measurements included quantitative and qualitative review of advance care planning in relation to standards set by The Association for Children's Palliative Care (ACT).
  • In 25% of cases there was no evidence of an advance care plan, and the content and accessibility of those that did exist was variable.
  • Forty-five percent of families were not offered a choice with regard to location of care (LOC) in the last months of life and 50% were not offered a choice about location of death (LOD).
  • CONCLUSIONS: We hope that acknowledgement of some of the challenges, alongside recognition of the clear benefits, of planning will help pediatricians to deliver this important area of care.

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  • (PMID = 24955940.001).
  • [ISSN] 1557-7740
  • [Journal-full-title] Journal of palliative medicine
  • [ISO-abbreviation] J Palliat Med
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] United States
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12. ||||||||.. 80%  Patel K, Janssen DJ, Curtis JR: Advance care planning in COPD. Respirology; 2012 Jan;17(1):72-8
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  • [Title] Advance care planning in COPD.
  • The review aims to discuss current concepts in advance care planning (ACP) for patients with COPD, and to provide a narrative review of recent trends in ACP and end-of-life care for patients with COPD.
  • ACP, which involves patient-clinician communication about end-of-life care, can improve outcomes for patients and their families, and may be especially relevant for patients with COPD.
  • It is important for clinicians to understand patients' values and preferences for life-sustaining treatments as well for their site of terminal care.
  • Unfortunately, discussions about ACP and end-of-life care in current practice are scarce, and their quality is often poor.
  • ACP should be implemented alongside curative-restorative care for patients with advanced COPD.
  • The disease course of COPD is such that there will rarely be a clear transition point predicting the timing of the need for initiation of end-of-life care.
  • Future studies should focus on interventions that facilitate concurrent ACP and prepare patients for making in-the-moment decisions, with the goal of improving the quality of end-of-life care.
  • [MeSH-major] Advance Care Planning. Dyspnea / therapy. Palliative Care. Pulmonary Disease, Chronic Obstructive / therapy. Terminal Care

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  • [Copyright] © 2011 The Authors. Respirology © 2011 Asian Pacific Society of Respirology.
  • (PMID = 22008225.001).
  • [ISSN] 1440-1843
  • [Journal-full-title] Respirology (Carlton, Vic.)
  • [ISO-abbreviation] Respirology
  • [Language] eng
  • [Publication-type] Journal Article; Review
  • [Publication-country] Australia
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13. ||||||||.. 80%  Brooke J, Kirk M: Advance care planning for people living with dementia. Br J Community Nurs; 2014 Oct;19(10):490-5
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning for people living with dementia.
  • The prevalence of dementia is increasing, however it is only recently that dementia has been recognised as a terminal disease where end-of-life care needs to be discussed and planned with the patient and their family.
  • Early diagnosis of dementia enables the person with dementia and their family to discuss the future, including plans for end-of-life care such as Advance Care Planning (ACP).
  • However, discussions regarding end-of-life care are not routine practice for people with dementia and their families.

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  • (PMID = 25284185.001).
  • [ISSN] 1462-4753
  • [Journal-full-title] British journal of community nursing
  • [ISO-abbreviation] Br J Community Nurs
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
  • [Keywords] NOTNLM ; Advance care planning / Dementia / End-of-life care
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14. ||||||||.. 79%  Samara J, Larkin D, Chan CW, Lopez V: Advance care planning in the oncology settings. Int J Evid Based Healthc; 2013 Jun;11(2):110-4
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning in the oncology settings.
  • BACKGROUND: Self-determination and patient choice of end-of-life care are emphasised in palliative care.
  • Advance care planning (ACP) is an approach to enabling patients' choices.
  • Little is known about oncology care nurses' views and the barriers they face in the implementation of ACP.
  • OBJECTIVE: The aims of this study were to assess the uptake of ACP by health professionals and explore nurses' perceived barriers for implementing ACP.
  • [MeSH-major] Advance Care Planning / standards. Attitude of Health Personnel. Medical Oncology / education. Oncology Nursing / education. Palliative Care / standards. Terminal Care / standards

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  • [Copyright] © 2013 The Authors. International Journal of Evidence-Based Healthcare © 2013 The Joanna Briggs Institute.
  • (PMID = 23750573.001).
  • [ISSN] 1744-1609
  • [Journal-full-title] International journal of evidence-based healthcare
  • [ISO-abbreviation] Int J Evid Based Healthc
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] Australia
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15. |||||||... 71%  Janssen DJ, Engelberg RA, Wouters EF, Curtis JR: Advance care planning for patients with COPD: past, present and future. Patient Educ Couns; 2012 Jan;86(1):19-24
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning for patients with COPD: past, present and future.
  • OBJECTIVE: To discuss the importance, current status and directions for improvement of advance care planning and communication about end-of-life care for patients with Chronic Obstructive Pulmonary Disease (COPD).
  • METHODS: Narrative review of the currently available literature regarding advance care planning and communication about end-of-life care in COPD.
  • RESULTS: Advance care planning, including patient-clinician communication about end-of-life care, can improve outcomes for patients and their families and may be particularly important for patients with COPD.
  • Despite these advantages, advance care planning and conversations about end-of-life care in current practice are limited and their quality is often poor.
  • CONCLUSION: Advance care planning can improve outcomes for patients and their relatives.
  • Recent studies provide directions for how to facilitate advance care planning for patients with COPD.
  • PRACTICE IMPLICATIONS: Advance care planning ought to be part of care for patients with advanced COPD.
  • Future studies should focus on interventions to facilitate advance care planning in patients with COPD with the goal of improving the quality of end-of-life care.
  • [MeSH-major] Advance Care Planning. Communication. Decision Making. Personal Autonomy. Physician-Patient Relations. Pulmonary Disease, Chronic Obstructive / psychology
  • [MeSH-minor] Humans. Patient Care Team. Patient Satisfaction. Prognosis


16. |||||||... 71%  Holley JL: Advance care planning in CKD/ESRD: an evolving process. Clin J Am Soc Nephrol; 2012 Jun;7(6):1033-8
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  • [Title] Advance care planning in CKD/ESRD: an evolving process.
  • Advance care planning was historically considered to be simply the completion of a proxy (health care surrogate designation) or instruction (living will) directive that resulted from a conversation between a patient and his or her physician.
  • We now know that advance care planning is a much more comprehensive and dynamic patient-centered process used by patients and families to strengthen relationships, achieve control over medical care, prepare for death, and clarify goals of care.
  • Some advance directives, notably designated health care proxy documents, remain appropriate expressions of advance care planning.
  • Moreover, although physician orders, such as do-not-resuscitate orders and Physician Orders for Life-Sustaining Treatment, may not be strictly defined as advance directives, their completion, when appropriate, is an integral component of advance care planning.
  • The changing health circumstances and illness trajectory characteristic of ESRD mandate that advance care planning discussions adapt to a patient's situation and therefore must be readdressed at appropriate times and intervals.
  • The options of withholding and withdrawing dialysis add ESRD-specific issues to advance care planning in this population and are events each nephrologist will at some time confront.
  • Advance care planning is important throughout the spectrum of ESRD and is a part of nephrology practice that can be rewarding to nephrologists and beneficial to patients and their families.
  • [MeSH-major] Advance Care Planning. Kidney Failure, Chronic / therapy. Quality of Life. Renal Dialysis
  • [MeSH-minor] Advance Directives. Communication. Disease Progression. Family Relations. Humans. Physician-Patient Relations. Professional-Family Relations. Prognosis. Proxy. Resuscitation Orders. Third-Party Consent. Time Factors. Treatment Refusal. Withholding Treatment

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  • (PMID = 22461536.001).
  • [ISSN] 1555-905X
  • [Journal-full-title] Clinical journal of the American Society of Nephrology : CJASN
  • [ISO-abbreviation] Clin J Am Soc Nephrol
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] United States
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17. |||||||... 71%  Jeong SY, Higgins I, McMillan M: The essentials of Advance Care Planning for end-of-life care for older people. J Clin Nurs; 2010 Feb;19(3-4):389-97
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] The essentials of Advance Care Planning for end-of-life care for older people.
  • AIMS AND OBJECTIVES: The aim of the study was to investigate the phenomenon of Advance Care Planning and the use of Advance Care Directives in residential aged care facilities in Australia.
  • The objectives were to: investigate the implementation process of Advance Care Planning and the use of Advance Care Directives; investigate the outcomes of Advance Care Planning and experiences of people involved in Advance Care Planning and Advance Care Directives, including residents, families and nursing staff.
  • BACKGROUND: Benefits of Advance Care Planning for older residents are considerable given their degenerative health-breakdown and minimal chance of recovery.
  • To date, the use of Advance Care Planning and Advance Care Directives is limited and models of service delivery and processes are needed to enhance best practice with Advance Care Planning and positive outcomes for older Australians.
  • METHODS: The study conducted using multiple sources of evidence to enrich understanding of the phenomenon of Advance Care Planning.
  • The findings contribute to the limited knowledge of options currently available to older adults and their families in their decision-making about end-of-life care options.
  • PERMISSION TO CONDUCT THE STUDY: Prior to commencement of the data collection, ethics clearances from the University of Newcastle and the regional Area Health Service were achieved.
  • Permission to access the residential aged care facilities to undertake the study was obtained from the relevant residential aged care facility ethics committees or designated authorities.
  • RESULTS: The research identified the components and factors involved in the Advance Care Planning process and in attaining desired outcomes.
  • The conceptual framework developed elaborates how Advance Care Planning should be implemented and what may constitute successful implementation of Advance Care Planning in residential aged care facilities.
  • The four main elements (input, throughput, output, feedback), and 20 sub-elements were requisites for nurses to initiate and implement the Advance Care Planning.
  • CONCLUSION: The essential components for end-of-life care are identified in the implementation processes of Advance Care Planning in residential aged care facilities.
  • RELEVANCE TO CLINICAL PRACTICE: The case study identified four determinative requisites for successful implementation of Advance Care Planning in aged care facilities: the expert nurse, discussion, education and involvement of a multidisciplinary team.
  • Nurses should take these factors into account and use person-centred approach in formalised processes to encourage participation in plans for end-of-life care.
  • [MeSH-major] Advance Directives. Planning Techniques. Terminal Care

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  • (PMID = 20500278.001).
  • [ISSN] 1365-2702
  • [Journal-full-title] Journal of clinical nursing
  • [ISO-abbreviation] J Clin Nurs
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] England
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18. |||||||... 70%  Randall F: Advance care planning: ethical and clinical implications for hospital medicine. Br J Hosp Med (Lond); 2011 Aug;72(8):437-40
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  • [Title] Advance care planning: ethical and clinical implications for hospital medicine.
  • Advance care planning takes place 'in advance of' anticipated loss of capacity with the aim of informing the best interests judgments required when capacity is later lost.
  • It is an ethically and clinically distinct subset of general care planning.
  • [MeSH-major] Advance Care Planning / ethics. Hospitals
  • [MeSH-minor] Advance Directives. Decision Making. Humans. Planning Techniques

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  • (PMID = 21841587.001).
  • [ISSN] 1750-8460
  • [Journal-full-title] British journal of hospital medicine (London, England : 2005)
  • [ISO-abbreviation] Br J Hosp Med (Lond)
  • [Language] eng
  • [Publication-type] Journal Article; Review
  • [Publication-country] England
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19. |||||||... 70%  Motley M: Improving patient-centered care through advance care planning. JAAPA; 2013 Jun;26(6):38-43
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  • [Title] Improving patient-centered care through advance care planning.
  • Advance care planning is crucial for patients confronting incurable, debilitating, or terminal disease.
  • Discussing end-of-life issues can reduce overtreatment and undertreatment as defined by the patient, and improve satisfaction with care.
  • [MeSH-major] Advance Directives. Patient-Centered Care / standards. Quality Improvement

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  • (PMID = 23805592.001).
  • [ISSN] 1547-1896
  • [Journal-full-title] JAAPA : official journal of the American Academy of Physician Assistants
  • [ISO-abbreviation] JAAPA
  • [Language] eng
  • [Publication-type] Journal Article; Review
  • [Publication-country] United States
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20. |||||||... 70%  Bloomer M, Tan H, Lee S: End of life care--the importance of advance care planning. Aust Fam Physician; 2010 Oct;39(10):734-7
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] End of life care--the importance of advance care planning.
  • BACKGROUND: Communication about end of life care may involve difficult conversations for patients, family members and health professionals.
  • However, a lack of understanding of a person's wishes about their future care may result in a loss of dignity for the person, and additional distress for their family members and health professionals and burden to the healthcare system.
  • OBJECTIVE: This article discusses the barriers to advance care planning and provides some guidance for the general practitioner in undertaking advance care planning with patients and their families.
  • Tips for initiating end of life discussions with patients and families utilising the 'PREPARED' acronym, and ensuring appropriate care delivery are included.
  • DISCUSSION: Involving patients and their family members in advance care planning may be challenging and time consuming for GPs.
  • [MeSH-major] Advance Care Planning. Terminal Care
  • [MeSH-minor] Aging. Attitude to Death. Australia. Humans. Palliative Care. Physician-Patient Relations

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  • (PMID = 20890474.001).
  • [ISSN] 0300-8495
  • [Journal-full-title] Australian family physician
  • [ISO-abbreviation] Aust Fam Physician
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] Australia
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21. |||||||... 69%  Jeong SY, Higgins I, tMcMillan M: Experiences with advance care planning: older people and family members' perspective. Int J Older People Nurs; 2011 Sep;6(3):176-86
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Experiences with advance care planning: older people and family members' perspective.
  • AIMS AND OBJECTIVES: The aim of this study is to report the findings of a case study that explored the phenomenon of advance care planning and advanced care directives in residential care settings in Australia.
  • BACKGROUND: Understanding the phenomenon of advance care planning and advanced care directives is vital to end of life decision making.
  • There are few studies that report the experiences of older people and family members in relation to advance care planning and advanced care directives.
  • FINDINGS: The participants' early experiences with advance care planning were expressed in unpleasant, hostile and negative ways.
  • Advance care planning led to a different level of appreciation of personal entity and transcendence.
  • However, advance care planning demands concerted action and support by everyone involved.
  • [MeSH-major] Advance Directives / psychology. Aging / psychology. Family / psychology. Geriatric Nursing / methods. Nursing Staff / psychology. Residential Facilities / organization & administration
  • [MeSH-minor] Adult. Aged. Attitude to Health. Australia. Female. Hostility. Humans. Male. Middle Aged. Multiple Sclerosis / nursing. Multiple Sclerosis / psychology. Nurse-Patient Relations. Nursing Methodology Research. Organizational Case Studies. Social Support. Terminal Care / organization & administration. Terminal Care / psychology


22. |||||||... 69%  Boddy J, Chenoweth L, McLennan V, Daly M: It's just too hard! Australian health care practitioner perspectives on barriers to advance care planning. Aust J Prim Health; 2013;19(1):38-45
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] It's just too hard! Australian health care practitioner perspectives on barriers to advance care planning.
  • This article presents findings from six focus groups with health care practitioners in an Australian hospital during 2010, which sought to elicit their perspectives on the barriers for people to plan their future health care should they become unwell.
  • Such knowledge is invaluable in overcoming the barriers associated with advance care planning and enhancing the uptake of advance directives and the appointment of an enduring power of attorney for people of all ages.
  • A person's rights to self-determination in health care, including decision making about their wishes for future care in the event they lose cognitive capacity, should not be overlooked against the backdrop of increasing pressure on health care systems.
  • Specifically, patient-centred barriers include lack of knowledge, accessibility concerns, the small 'window of opportunity' to discuss advance care planning, emotional reactions and avoidance when considering one's mortality, and demographic influences.
  • At the practitioner level, barriers relate to a lack of knowledge and uncertainty around advance care planning processes.
  • Systemically, legislative barriers (including a lack of a central registry and conflicting state legislation), procedural issues (particularly in relation to assessing cognitive capacity and making decisions ad hoc) and questions about delegation, roles and responsibilities further compound the barriers to advance care planning.
  • [MeSH-major] Advance Care Planning. Attitude of Health Personnel

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  • (PMID = 22951247.001).
  • [ISSN] 1448-7527
  • [Journal-full-title] Australian journal of primary health
  • [ISO-abbreviation] Aust J Prim Health
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] Australia
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23. |||||||... 69%  Black K: Promoting advance care planning through the National Healthcare Decisions Day initiative. J Soc Work End Life Palliat Care; 2010;6(1-2):11-26
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  • [Title] Promoting advance care planning through the National Healthcare Decisions Day initiative.
  • National Healthcare Decisions Day is a nationwide campaign aimed at increasing advance care planning among adults throughout the country.
  • This broad-scale initiative simultaneously seeks to encourage Americans to express their wishes regarding future healthcare decision making, rally a national media campaign to promote the importance of planning in advance for care, and mobilize national, state, and community organizations to develop a wide range of educational activities.
  • The movement culminates in an annual day of multiple events throughout the country designed to inundate the public about advance care planning.
  • The national event originated from the successful statewide Virginia Advance Directives Day's inaugural event, conducted on April 18, 2006.
  • [MeSH-major] Advance Care Planning. Health Promotion
  • [MeSH-minor] Advance Directives. Humans. Planning Techniques. Program Evaluation. Social Work. United States

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  • (PMID = 20544475.001).
  • [ISSN] 1552-4264
  • [Journal-full-title] Journal of social work in end-of-life & palliative care
  • [ISO-abbreviation] J Soc Work End Life Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] England
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24. |||||||... 69%  Baughman KR, Aultman J, Hazelett S, Palmisano B, O'Neill A, Ludwick R, Sanders M: Managing in the trenches of consumer care: the challenges of understanding and initiating the advance care planning process. J Gerontol Soc Work; 2012;55(8):721-37
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Managing in the trenches of consumer care: the challenges of understanding and initiating the advance care planning process.
  • To better understand how community-based long-term care providers define advance care planning and their role in the process, we conducted 8 focus groups with 62 care managers (social workers and registered nurses) providing care for Ohio's Medicaid waiver program.
  • Care managers shared that most consumers had little understanding of advance care planning.
  • The care managers defined it broadly, including legal documentation, social aspects, medical considerations, ongoing communication, and consumer education.
  • Care managers saw their roles as information providers, healthcare team members, and educators/coaches.
  • [MeSH-major] Advance Care Planning / organization & administration. Health Personnel. Health Services for the Aged. Long-Term Care. Patient Care Management. Social Work / standards
  • [MeSH-minor] Attitude of Health Personnel. Decision Making. Focus Groups. Humans. Interpersonal Relations. Needs Assessment. Ohio. Patient Education as Topic. Qualitative Research. Terminal Care / organization & administration. Terminal Care / psychology

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  • (PMID = 23078607.001).
  • [ISSN] 1540-4048
  • [Journal-full-title] Journal of gerontological social work
  • [ISO-abbreviation] J Gerontol Soc Work
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] United States
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25. |||||||... 69%  Simpson C: Advance care planning in COPD: care versus "code status". Chron Respir Dis; 2012 Aug;9(3):193-204
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  • [Title] Advance care planning in COPD: care versus "code status".
  • Responsibility for initiating advance care planning in COPD has usually fallen to the physicians.
  • The tendency has been to avoid this aspect of care, which can result in inadequate, rushed, reactive, crisis decision-making in the form of a "code status" discussion.
  • In this article, I review the relevant literature and report findings from a qualitative study designed within my doctoral program to explore the question, "What is required for meaningful and effective advance care planning in the context of advanced COPD?
  • " I describe the "collaborative care" approach to advance care planning I used with eight patients and carers living with advanced COPD.
  • Done well, it may reclaim the care element in advance care planning as it addresses barriers cited by physicians and patients/families.
  • [MeSH-major] Advance Care Planning. Communication. Physician-Patient Relations. Pulmonary Disease, Chronic Obstructive / therapy
  • [MeSH-minor] Aged. Decision Making. Female. Humans. Male. Middle Aged. Palliative Care. Resuscitation Orders


26. |||||||... 69%  Butler M, Ratner E, McCreedy E, Shippee N, Kane RL: Decision aids for advance care planning: an overview of the state of the science. Ann Intern Med; 2014 Sep 16;161(6):408-18
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Decision aids for advance care planning: an overview of the state of the science.
  • Advance care planning honors patients' goals and preferences for future care by creating a plan for when illness or injury impedes the ability to think or communicate about health decisions.
  • Fewer than 50% of severely or terminally ill patients have an advance directive in their medical record, and physicians are accurate only about 65% of the time when predicting patient preferences for intensive care.
  • Decision aids can support the advance care planning process by providing a structured approach to informing patients about care options and prompting them to document and communicate their preferences.
  • This review, commissioned as a technical brief by the Agency for Healthcare Research and Quality Effective Health Care Program, provides a broad overview of current use of and research related to decision aids for adult advance care planning.
  • The 16 published studies testing decision aids as interventions for adult advance care planning found that most are proprietary or not publicly available.
  • Future efforts should include further research, training of advance care planning facilitators, dissemination and access, and tapping potential opportunities in social media or other technologies.
  • [MeSH-major] Advance Care Planning. Decision Support Techniques

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  • (PMID = 25069709.001).
  • [ISSN] 1539-3704
  • [Journal-full-title] Annals of internal medicine
  • [ISO-abbreviation] Ann. Intern. Med.
  • [Language] eng
  • [Grant] United States / PHS HHS / / HHSA 290 2012 00016 1
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, Non-P.H.S.; Research Support, U.S. Gov't, P.H.S.; Review
  • [Publication-country] United States
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27. |||||||... 69%  Gittler J: Advance care planning and surrogate health care decision making for older adults. J Gerontol Nurs; 2011 May;37(5):15-9
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning and surrogate health care decision making for older adults.
  • Older adults have a legally recognized right to determine and control the health care they receive and are legally presumed to possess the capacity necessary to make health care decisions.
  • However, older adults are at major risk for life-threatening and serious health problems leading to a loss of their capacity to make end-of-life and other health care decisions.
  • Advance care planning is a process that enables older adults to specify who they want to act as a surrogate decision maker and what decisions they want made for them in the event of incapacitation.
  • Geriatric nurses can play a significant role in promoting advance care planning and the use of legal tools for such planning.
  • [MeSH-major] Advance Care Planning. Decision Making

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  • [Copyright] Copyright 2011, SLACK Incorporated.
  • (PMID = 21485982.001).
  • [ISSN] 0098-9134
  • [Journal-full-title] Journal of gerontological nursing
  • [ISO-abbreviation] J Gerontol Nurs
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] United States
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28. |||||||... 69%  Levi BH, Wilkes M, Der-Martirosian C, Latow P, Robinson M, Green MJ: An interactive exercise in advance care planning for medical students. J Palliat Med; 2013 Dec;16(12):1523-7
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] An interactive exercise in advance care planning for medical students.
  • BACKGROUND: With the growing need to train medical professionals how to engage their patients in advance care planning, this study examines medical students' experience using an interactive, online decision aid to help consenting adults complete an advance directive.
  • METHODS: Third-year medical students at the University of California, Davis (UC Davis) used an online, multimedia decision aid to help an adult discuss his or her wishes for medical treatment and create a formal advance directive for health care.
  • 1) students' personal experiences with advance care planning;.
  • 3) recommendations for practice regarding advance care planning; and 4) feedback about the online decision aid.
  • CONCLUSIONS: An interactive, online decision aid can play a meaningful role in educating medical professionals about advance care planning.
  • [MeSH-major] Advance Care Planning. Decision Support Techniques. Students, Medical / psychology. Teaching / methods

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  • (PMID = 24175635.001).
  • [ISSN] 1557-7740
  • [Journal-full-title] Journal of palliative medicine
  • [ISO-abbreviation] J Palliat Med
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] United States
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29. |||||||... 68%  Wada T: [Depression screening and possible applications of advance care planning]. Nihon Ronen Igakkai Zasshi; 2013;50(3):319-22
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  • [Title] [Depression screening and possible applications of advance care planning].
  • Depression screening was conducted to determine the health status of community-dwelling elderly individuals, and the concept of advance care planning was introduced.
  • Advance care planning is a process of discussion between individuals and their care providers to make decisions about future care preferences and priorities, while they are still capable.
  • If they wish, they may prepare an advance directive to inform others about their decisions and best interests, such as a written advance decision to refuse treatment and/or appointment of a person with lasting powers of attorney.
  • The purpose of advance care planning is to enable elderly persons to receive better end-of-life care.
  • To promote introduction of advance care planning in Japan, voluntary discussion among family members should be encouraged.
  • [MeSH-major] Advance Care Planning. Depression / diagnosis

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  • (PMID = 23979330.001).
  • [ISSN] 0300-9173
  • [Journal-full-title] Nihon Ronen Igakkai zasshi. Japanese journal of geriatrics
  • [ISO-abbreviation] Nihon Ronen Igakkai Zasshi
  • [Language] jpn
  • [Publication-type] English Abstract; Journal Article
  • [Publication-country] Japan
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30. |||||||... 68%  Gesme DH, Wiseman M: Advance care planning with your patients. J Oncol Pract; 2011 Nov;7(6):e42-4
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning with your patients.
  • Studies have shown that patients want their doctor to talk to them about their advance care plans, and they want that discussion sooner rather than later.

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  • (PMID = 22379431.001).
  • [ISSN] 1935-469X
  • [Journal-full-title] Journal of oncology practice / American Society of Clinical Oncology
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31. |||||||... 68%  Davison SN: Advance care planning in patients with chronic kidney disease. Semin Dial; 2012 Nov-Dec;25(6):657-63
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  • [Title] Advance care planning in patients with chronic kidney disease.
  • Poor communication and failure to establish goals of care result in unnecessary admissions to hospital, invasive procedures, suffering, and prolongation of the dying process for many CKD patients.
  • Comprehensive CKD care requires systematic integration of advance care planning (ACP).
  • [MeSH-major] Advance Care Planning. Kidney Failure, Chronic / therapy. Renal Dialysis


32. |||||||... 68%  Sudore RL, Fried TR: Redefining the "planning" in advance care planning: preparing for end-of-life decision making. Ann Intern Med; 2010 Aug 17;153(4):256-61
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Redefining the "planning" in advance care planning: preparing for end-of-life decision making.
  • The traditional objective of advance care planning has been to have patients make treatment decisions in advance so that clinicians can attempt to provide care consistent with their goals.
  • The authors contend that the objective for advance care planning ought to be the preparation of patients and surrogates to participate with clinicians in making the best possible in-the-moment medical decisions.
  • Advance directives, although important, are just one piece of information to be used at the time of decision making.
  • [MeSH-major] Advance Care Planning. Decision Making. Patient Preference / psychology. Proxy / psychology

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  • (PMID = 20713793.001).
  • [ISSN] 1539-3704
  • [Journal-full-title] Annals of internal medicine
  • [ISO-abbreviation] Ann. Intern. Med.
  • [Language] eng
  • [Grant] United States / NIA NIH HHS / AG / K24 AG028443; United States / NIA NIH HHS / AG / K24 AG028443; United States / NIA NIH HHS / AG / K24 AG028443-02
  • [Publication-type] Journal Article; Research Support, N.I.H., Extramural; Research Support, U.S. Gov't, Non-P.H.S.
  • [Publication-country] United States
  • [Other-IDs] NLM/ NIHMS227081; NLM/ PMC2935810
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33. |||||||... 67%  Samanta A, Samanta J: Advance care planning: the role of the nurse. Br J Nurs; 2010 Sep 9-22;19(16):1060-1
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning: the role of the nurse.
  • Advance care planning is a process designed to enable patients to discuss and record their values and treatment preferences to inform future care in the event that they lose decision-making capacity.
  • Current law provides for the appointment of a proxy decision-maker under a Lasting Power of Attorney, or advance decisions for treatment refusal.
  • [MeSH-major] Advance Care Planning / legislation & jurisprudence. Nurse's Role. Patient Advocacy / legislation & jurisprudence

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  • (PMID = 20852473.001).
  • [ISSN] 0966-0461
  • [Journal-full-title] British journal of nursing (Mark Allen Publishing)
  • [ISO-abbreviation] Br J Nurs
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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34. |||||||... 67%  Aw D, Hayhoe B, Smajdor A, Bowker LK, Conroy SP, Myint PK: Advance care planning and the older patient. QJM; 2012 Mar;105(3):225-30
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning and the older patient.
  • Advance care planning should help with making these decisions clearer, based on the documented preferences of what the patient would have wanted while capacity was still present.
  • However, such documents are still very rarely used, and even if they are, health-care professionals are often wary of them for the multitude of ethical and legal problems that can arise.
  • [MeSH-major] Advance Care Planning / ethics. Advance Care Planning / utilization. Advance Directives / ethics
  • [MeSH-minor] Age Factors. Aged. Comorbidity. Decision Making. Health Knowledge, Attitudes, Practice. Humans. Professional-Patient Relations

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  • (PMID = 22075012.001).
  • [ISSN] 1460-2393
  • [Journal-full-title] QJM : monthly journal of the Association of Physicians
  • [ISO-abbreviation] QJM
  • [Language] eng
  • [Publication-type] Journal Article; Review
  • [Publication-country] England
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35. |||||||... 67%  Baughman KR, Aultman JM, Ludwick R, O'Neill A: Narrative analysis of the ethics in providing advance care planning. Nurs Ethics; 2014 Feb;21(1):53-63
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Narrative analysis of the ethics in providing advance care planning.
  • Our objective was to better understand the values and ethical dilemmas surrounding advance care planning through stories told by registered nurses and licensed social workers, who were employed as care managers within Area Agencies on Aging.
  • We conducted eight focus groups in which care managers were invited to tell their stories and answer open-ended questions focusing on their interactions with consumers receiving home-based long-term care.

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  • (PMID = 23702895.001).
  • [ISSN] 1477-0989
  • [Journal-full-title] Nursing ethics
  • [ISO-abbreviation] Nurs Ethics
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] England
  • [Keywords] NOTNLM ; Advance care planning / care managers / end-of-life decisions / ethical dilemmas / narrative analysis / registered nurses / social workers
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36. |||||||... 66%  Kwak J, Wallendal MS, Fritsch T, Leo G, Hyde T: Advance care planning and proxy decision making for patients with advanced Parkinson disease. South Med J; 2014 Mar;107(3):178-85
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning and proxy decision making for patients with advanced Parkinson disease.
  • OBJECTIVES: To examine advance care planning practices and proxy decision making by family healthcare proxies for patients with advanced Parkinson disease (PD).
  • Patients who shared advance directives with a physician were significantly less likely to choose CPR and a feeding tube and they were more likely to choose hospice.
  • In a hypothetical end-of-life (EOL) scenario, the majority of proxies chose comfort care as the EOL goal of care (53%) and pain and symptom management only as the course of treatment option (72%); these proxy choices for patients, however, were not associated with patients' preferences for life support.
  • CONCLUSIONS: Advance care planning is effective when patients, families, and healthcare professionals together consider future needs for EOL care decisions.
  • Further efforts are needed by healthcare professionals to provide evidence-based education about care options and facilitate advanced discussion and shared decision making by the patient and families.
  • [MeSH-major] Advance Care Planning / statistics & numerical data. Parkinson Disease / therapy. Proxy / statistics & numerical data
  • [MeSH-minor] Aged. Cross-Sectional Studies. Family. Female. Humans. Living Wills / statistics & numerical data. Male. Middle Aged. Spouses. Terminal Care / statistics & numerical data. United States / epidemiology

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  • [CommentIn] South Med J. 2014 Mar;107(3):186-7 [24937338.001]
  • (PMID = 24937337.001).
  • [ISSN] 1541-8243
  • [Journal-full-title] Southern medical journal
  • [ISO-abbreviation] South. Med. J.
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] United States
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37. |||||||... 66%  Collins M, Lehane E: Perspectives on death, dying and advance care planning from patients receiving haemodialysis. J Ren Care; 2013 Mar;39(1):5-11
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Perspectives on death, dying and advance care planning from patients receiving haemodialysis.
  • BACKGROUND: The illness trajectory of End Stage Kidney Disease (ESKD) is not linear therefore it can be difficult for practitioners to know when end-of-life care begins.
  • Advance care planning (ACP) allows patients to take part in decision making, however much of the research conducted stems from North America and Canada where individuals have experience of ACP.
  • CONCLUSION: This study provides an insight into what is important to patients in relation to death, dying and advance care planning.
  • [MeSH-major] Advance Care Planning. Attitude to Death. Decision Making. Kidney Failure, Chronic / nursing. Kidney Failure, Chronic / psychology. Renal Dialysis / nursing. Renal Dialysis / psychology. Sick Role
  • [MeSH-minor] Aged. Aged, 80 and over. Cross-Cultural Comparison. Female. Humans. Ireland. Life Support Care / psychology. Male. Middle Aged. Palliative Care. Questionnaires

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  • [Copyright] © 2013 European Dialysis and Transplant Nurses Association/European Renal Care Association.
  • (PMID = 23432739.001).
  • [ISSN] 1755-6686
  • [Journal-full-title] Journal of renal care
  • [ISO-abbreviation] J Ren Care
  • [Language] eng
  • [Publication-type] Comparative Study; Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] United States
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38. |||||||... 66%  Moorman SM, Carr D, Boerner K: The role of relationship biography in advance care planning. J Aging Health; 2014 Sep;26(6):969-92
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] The role of relationship biography in advance care planning.
  • OBJECTIVE: We examine the ways that romantic relationship biographies are related to whether, how, and with whom individuals complete advance care planning (ACP), preparations for end-of-life medical care.
  • DISCUSSION: Couples who foresee a long and stable future together are those most likely to engage in end-of-life planning, a preventative health behavior with long-term consequences for well-being.
  • [MeSH-major] Advance Care Planning / organization & administration. Interpersonal Relations. Marital Status / statistics & numerical data. Sexual Partners / psychology

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  • [Copyright] © The Author(s) 2014.
  • (PMID = 24891562.001).
  • [ISSN] 1552-6887
  • [Journal-full-title] Journal of aging and health
  • [ISO-abbreviation] J Aging Health
  • [Language] eng
  • [Grant] United States / ASPE HHS / AE / 5 U01 AE000001-05
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, P.H.S.
  • [Publication-country] United States
  • [Keywords] NOTNLM ; cohabitation / commitment / health behaviors / medical decision making / multilevel models
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39. |||||||... 66%  Schubart JR, Levi BH, Camacho F, Whitehead M, Farace E, Green MJ: Reliability of an interactive computer program for advance care planning. J Palliat Med; 2012 Jun;15(6):637-42
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Reliability of an interactive computer program for advance care planning.
  • Despite widespread efforts to promote advance directives (ADs), completion rates remain low.
  • Making Your Wishes Known: Planning Your Medical Future (MYWK) is an interactive computer program that guides individuals through the process of advance care planning, explaining health conditions and interventions that commonly involve life or death decisions, helps them articulate their values/goals, and translates users' preferences into a detailed AD document.
  • [MeSH-major] Advance Care Planning. User-Computer Interface

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  • (PMID = 22512830.001).
  • [ISSN] 1557-7740
  • [Journal-full-title] Journal of palliative medicine
  • [ISO-abbreviation] J Palliat Med
  • [Language] eng
  • [Grant] United States / NINR NIH HHS / NR / 1R21NR008539
  • [Publication-type] Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't
  • [Publication-country] United States
  • [Other-IDs] NLM/ PMC3362955
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40. |||||||... 66%  Michael N, O'Callaghan C, Clayton J, Pollard A, Stepanov N, Spruyt O, Michael M, Ball D: Understanding how cancer patients actualise, relinquish, and reject advance care planning: implications for practice. Support Care Cancer; 2013 Aug;21(8):2195-205
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Understanding how cancer patients actualise, relinquish, and reject advance care planning: implications for practice.
  • PURPOSE: Although advance care planning (ACP) is recognised as integral to quality cancer care, it remains poorly integrated in many settings.
  • Actualisation of each component involves considering, possibly conversing about, planning, and communicating a decision, usually iteratively.
  • Reactions can change over time and are informed by values, memories, personalities, health perceptions, appreciation of prognoses, and trust or doubts in their substitute decision makers.
  • [MeSH-major] Advance Care Planning. Communication. Decision Making. Neoplasms / psychology
  • [MeSH-minor] Adult. Advance Directives. Aged. Australia. Female. Humans. Male. Middle Aged. Models, Psychological. Reproducibility of Results. Trust

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  • (PMID = 23494583.001).
  • [ISSN] 1433-7339
  • [Journal-full-title] Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer
  • [ISO-abbreviation] Support Care Cancer
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] Germany
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41. |||||||... 66%  Heffner JE: Advance care planning in chronic obstructive pulmonary disease: barriers and opportunities. Curr Opin Pulm Med; 2011 Mar;17(2):103-9
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning in chronic obstructive pulmonary disease: barriers and opportunities.
  • PURPOSE OF REVIEW: Experts in palliative care have increasingly recognized the global epidemic of chronic obstructive pulmonary disease (COPD), its astonishing rise in prevalence, and its profound impact on patients' quality of life and functional capacity.
  • Unfortunately, patients with COPD receive less advance care planning (ACP) and palliative care as compared with patients with other diseases with similar prognoses.
  • This review highlights recent advances in identifying barriers to ACP and opportunities for providing more effective and timely palliative care.
  • Disease-directed care provides only partial relief from dyspnea, which eventually becomes refractory and requires transition to palliative care.
  • Throughout all stages of COPD, however, integrating palliative care with disease-directed treatments improves patients' well being and functional capacities.
  • Because of the unique disease trajectory of COPD, professional groups have proposed new models for palliative care specifically tailored to COPD.
  • SUMMARY: Patients with COPD benefit from better integration of palliative and disease-specific care throughout the course of their disease from diagnosis to death.
  • Pulmonary rehabilitation may provide a platform for coordinating integrated care.
  • Health agencies will increasingly expect better coordination of services for patients with this progressive, disabling, and eventually terminal disease.
  • [MeSH-major] Advance Care Planning. Palliative Care. Pulmonary Disease, Chronic Obstructive / therapy


42. |||||||... 66%  Blackford J, Street AF: Facilitating advance care planning in community palliative care: conversation starters across the client journey. Int J Palliat Nurs; 2013 Mar;19(3):132-9
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Facilitating advance care planning in community palliative care: conversation starters across the client journey.
  • This paper describes the development of a tool for palliative care nurses to initiate and facilitate advance care planning (ACP) conversations in community palliative care practice.
  • Seven community palliative care services located across Australia participated in a multi-site action research project.
  • Data included participant observation, individual and focus group interviews with palliative care health professionals, and medical record audit.
  • A directed content analysis used a pre-established palliative care practice framework of referral, admission, ongoing management, and terminal/discharge care.
  • It provided palliative care nurses the opportunity to introduce and progress ACP conversations.
  • [MeSH-major] Advance Care Planning. Community Health Services. Palliative Care

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  • (PMID = 23665571.001).
  • [ISSN] 1357-6321
  • [Journal-full-title] International journal of palliative nursing
  • [ISO-abbreviation] Int J Palliat Nurs
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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43. |||||||... 66%  Rhee JJ, Zwar NA, Kemp LA: Uptake and implementation of Advance Care Planning in Australia: findings of key informant interviews. Aust Health Rev; 2012 Feb;36(1):98-104
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Uptake and implementation of Advance Care Planning in Australia: findings of key informant interviews.
  • OBJECTIVE: Advance Care Planning (ACP) has an important role in enhancing patient autonomy and guiding end-of-life care.
  • However, there is low uptake of ACP and evidence that advance care plans are often not implemented.
  • We explored these issues in interviews with expert clinicians and representatives of key stakeholder organisations with interest in end-of-life care.
  • RESULTS: Participants thought that the low uptake of ACP in Australia is a result of inadequate awareness, societal reluctance to discuss end-of-life issues, and lack of health professionals' involvement in ACP.
  • Problems in implementation of advance care plans were thought to be a result of problems in accessing ACP documents; interpreting written documents; making binding decisions for future unpredictable situations; and paternalistic attitudes of health professionals and families.
  • Participants had different perspectives on how advance care plans should be implemented, with some believing in strict implementation, whereas others believed in a more flexible approach.
  • IMPLICATIONS: Low uptake and poor implementation of advance care plans may be addressed by (1) increasing community awareness;.
  • (2) encouraging health professional involvement; and (3) system-wide implementation of multi-faceted interventions.
  • A patient-centred approach to ACP is required to resolve the differences in views on how advance care plans should be implemented.
  • [MeSH-major] Advance Care Planning / utilization. Diffusion of Innovation
  • [MeSH-minor] Australia. Humans. Interviews as Topic. Terminal Care / organization & administration

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  • (PMID = 22513028.001).
  • [ISSN] 0156-5788
  • [Journal-full-title] Australian health review : a publication of the Australian Hospital Association
  • [ISO-abbreviation] Aust Health Rev
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] Australia
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44. |||||||... 66%  Billings JA, Bernacki R: Strategic targeting of advance care planning interventions: the Goldilocks phenomenon. JAMA Intern Med; 2014 Apr;174(4):620-4
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Strategic targeting of advance care planning interventions: the Goldilocks phenomenon.
  • Strategically selecting patients for discussions and documentation about limiting life-sustaining treatments-choosing the right time along the end-of-life trajectory for such an intervention and identifying patients at high risk of facing end-of-life decisions-can have a profound impact on the value of advance care planning (ACP) efforts.
  • Timing is important because the completion of an advance directive (AD) too far from or too close to the time of death can lead to end-of-life decisions that do not optimally reflect the patient's values, goals, and preferences: a poorly chosen target patient population that is unlikely to need an AD in the near future may lead to patients making unrealistic, hypothetical choices, while assessing preferences in the emergency department or hospital in the face of a calamity is notoriously inadequate.
  • [MeSH-major] Advance Care Planning. Patient Selection

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  • (PMID = 24493203.001).
  • [ISSN] 2168-6114
  • [Journal-full-title] JAMA internal medicine
  • [ISO-abbreviation] JAMA Intern Med
  • [Language] eng
  • [Grant] United States / PHS HHS / / 1K01 HP 20462
  • [Publication-type] Journal Article; Research Support, U.S. Gov't, P.H.S.
  • [Publication-country] United States
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45. |||||||... 66%  Séchaud L, Goulet C, Morin D, Mazzocato C: Advance care planning for institutionalised older people: an integrative review of the literature. Int J Older People Nurs; 2014 Jun;9(2):159-68
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning for institutionalised older people: an integrative review of the literature.
  • BACKGROUND: This integrative review of the literature describes the evolution in knowledge and the paradigm shift that is necessary to switch from advance directives to advance care planning.
  • RESULTS: It thus provides nursing professionals with evidence-based information in the form of a synthetic vision and conceptual framework to support the development of innovative care practices in the end-of-life context.
  • While theoretical work places particular emphasis on the impact of changes in practice on the quality of care received by residents, empirical research highlights the importance of communication between the different persons involved about care preferences at the end of life and the need for agreement between them.
  • CONCLUSIONS: The concept of quality of life and the dimensions and factors that compose it form the basis of Advance care planning (ACP) and enable the identification of the similarities and differences between various actors.
  • They inform professionals of the need to ease off the biomedical approach to consider the attributes prioritised by those concerned, whether patients or families, so as to improve the quality of care at the end of life.

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  • [Copyright] © 2013 John Wiley & Sons Ltd.
  • (PMID = 23782911.001).
  • [ISSN] 1748-3743
  • [Journal-full-title] International journal of older people nursing
  • [ISO-abbreviation] Int J Older People Nurs
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] England
  • [Keywords] NOTNLM ; advance care planning / advance directives / older person
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46. |||||||... 66%  Robinson CA: Advance care planning: re-visioning our ethical approach. Can J Nurs Res; 2011 Jun;43(2):18-37
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning: re-visioning our ethical approach.
  • This qualitative study explored the applicability and usefulness of a promising advance care planning (ACP) intervention and examined the ACP process.
  • The process was found not to be one of preparing a substitute decision-maker to speak for oneself and direct health care at a time when one is incapacitated; rather, the families engaged in a deeply relational process where meaning, values, and preferences were negotiated in conversation.
  • [MeSH-major] Advance Care Planning. Ethics, Nursing

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  • (PMID = 21888004.001).
  • [ISSN] 0844-5621
  • [Journal-full-title] The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmières
  • [ISO-abbreviation] Can J Nurs Res
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] Canada
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47. |||||||... 65%  Nguyen M, Chamber-Evans J, Joubert A, Drouin I, Ouellet I: Exploring the advance care planning needs of moderately to severely ill people with COPD. Int J Palliat Nurs; 2013 Aug;19(8):389-95
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Exploring the advance care planning needs of moderately to severely ill people with COPD.
  • BACKGROUND: There is no clear consensus on how to approach advance care planning (ACP) with people with chronic obstructive pulmonary disease (COPD).
  • CONCLUSIONS: Health professionals should not rely solely on illness severity to initiate ACP.
  • [MeSH-major] Advance Care Planning. Health Services Needs and Demand. Pulmonary Disease, Chronic Obstructive / therapy

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  • (PMID = 23970295.001).
  • [ISSN] 1357-6321
  • [Journal-full-title] International journal of palliative nursing
  • [ISO-abbreviation] Int J Palliat Nurs
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] England
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48. |||||||... 65%  Scott IA, Mitchell GK, Reymond EJ, Daly MP: Difficult but necessary conversations--the case for advance care planning. Med J Aust; 2013 Nov 18;199(10):662-6
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Difficult but necessary conversations--the case for advance care planning.
  • Many patients at the end of life receive care that is inappropriate or futile and, if given the opportunity to discuss their care preferences well ahead of death, may well have chosen to forgo such care.
  • Advance care planning (ACP) is a process of making decisions about future health care for patients in consultation with clinicians, family members and important others, and to safeguard such decisions if patients were to lose decisional capacity.
  • The chief barriers have been social and personal taboos about discussing the dying process, avoidance by medical professionals of responsibility for initiating, coordinating and documenting discussions about ACP, absence of robust and standardised procedures for recording and retrieving ACP documents across multiple care settings, and legal and ethical concerns about the validity of such documents.
  • For ACP to become part of mainstream patient-centred care, accountable clinicians working in primary care, hospitals and nursing homes must effectively educate colleagues and patients about the purpose and mechanics of ACP, mandate ACP for all eligible patients, document ACP in accessible formats that enable patient wishes to accurately guide clinical management, devise methods for reviewing ACP decisions when clinically appropriate, and evaluate congruence between expressed patient wishes and actual care received.
  • Public awareness campaigns coupled with implementation of ACP programs sponsored by collaborations between hospital and health services, Medicare locals and residential care facilities will be needed in making system-wide ACP a reality.
  • [MeSH-major] Advance Care Planning. Patient Acceptance of Health Care. Professional-Patient Relations
  • [MeSH-minor] Australia. Consumer Health Information. Humans. Patient Education as Topic. Professional-Family Relations

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  • (PMID = 24237095.001).
  • [ISSN] 1326-5377
  • [Journal-full-title] The Medical journal of Australia
  • [ISO-abbreviation] Med. J. Aust.
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] Australia
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49. |||||||... 65%  Fried TR, Redding CA, Robbins ML, O'Leary JR, Iannone L: Agreement between older persons and their surrogate decision-makers regarding participation in advance care planning. J Am Geriatr Soc; 2011 Jun;59(6):1105-9
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Agreement between older persons and their surrogate decision-makers regarding participation in advance care planning.
  • OBJECTIVES: To examine agreement between older persons and their surrogates regarding participation in advance care planning (ACP).
  • [MeSH-major] Advance Care Planning. Communication. Decision Making. Legal Guardians / psychology
  • [MeSH-minor] Aged. Aged, 80 and over. Caregivers / psychology. Chronic Disease / psychology. Comorbidity. Female. Health Status. Humans. Life Support Care / psychology. Living Wills. Male. Quality of Life / psychology

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  • [Copyright] © 2011, Copyright the Authors. Journal compilation © 2011, The American Geriatrics Society.
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  • (PMID = 21649619.001).
  • [ISSN] 1532-5415
  • [Journal-full-title] Journal of the American Geriatrics Society
  • [ISO-abbreviation] J Am Geriatr Soc
  • [Language] eng
  • [Grant] United States / NIA NIH HHS / AG / K24 AG028443; United States / NIA NIH HHS / AG / K24 AG28443; United States / NIA NIH HHS / AG / P30 AG021342; United States / NIA NIH HHS / AG / P30AG21342; United States / NIA NIH HHS / AG / R01 AG019769; United States / NIA NIH HHS / AG / R01 AG19769
  • [Publication-type] Journal Article; Research Support, N.I.H., Extramural
  • [Publication-country] United States
  • [Other-IDs] NLM/ NIHMS583484; NLM/ PMC4036693
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50. |||||||... 65%  Cohen A, Nirenberg A: Current practices in advance care planning: implications for oncology nurses. Clin J Oncol Nurs; 2011 Oct;15(5):547-53
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Current practices in advance care planning: implications for oncology nurses.
  • Discussions regarding advance care planning (ACP) among patients with cancer and their physicians largely are not happening.
  • Many patients with cancer, even those at the end of life (EOL), have not established an advance directive (AD).
  • Lack of EOL discussions and receipt of aggressive care at the EOL have resulted in poor health outcomes for patients.
  • In contrast, EOL discussions and early palliative care resulted in positive health outcomes for patients with cancer.
  • [MeSH-major] Advance Care Planning. Neoplasms / therapy. Oncology Nursing. Physician's Practice Patterns

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  • (PMID = 21951741.001).
  • [ISSN] 1538-067X
  • [Journal-full-title] Clinical journal of oncology nursing
  • [ISO-abbreviation] Clin J Oncol Nurs
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't; Review
  • [Publication-country] United States
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