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1. Biomedical articles (top 50; 2009 to 2014)
1. |||||||||. 100%  Bird S: Advance care planning. Aust Fam Physician; 2014 Aug;43(8):526-8
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning.
  • BACKGROUND: Good Medical Practice: A Code of Conduct for Doctors in Australia states that in caring for patients towards the end of their life, good medical practice involves facilitating advance care planning.
  • OBJECTIVE: This article discusses the role of advance care planning in end-of-life care, with an emphasis on the ethical and legal framework for advance care directives.
  • DISCUSSION: There has been an increased focus on advanced care planning and advance care directives in Australia, partly driven by the ageing population and technological advances, as well as the principle of patient-centred care.
  • General practitioners have an important role in initiating and facilitating advance care planning.

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  • (PMID = 25114986.001).
  • [ISSN] 0300-8495
  • [Journal-full-title] Australian family physician
  • [ISO-abbreviation] Aust Fam Physician
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] Australia
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2. |||||||||. 89%  Billings JA: The need for safeguards in advance care planning. J Gen Intern Med; 2012 May;27(5):595-600
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  • [Title] The need for safeguards in advance care planning.
  • The recent uproar about Medicare "death panels" draws attention to public and professional concerns that advance care planning might restrict access to desired life-sustaining care.
  • The primary goal of advance care planning is to promote the autonomy of a decisionally incapacitated patient when choices about life-sustaining treatments are encountered, but the safety of this procedure has not received deserved scrutiny.
  • Patients often do not understand their decisions or they may change their mind without changing their advance care directives.
  • A few recent reports show encouraging outcomes from advance care planning, but most studies indicate that the procedure is ineffective in protecting patients from unwanted treatments and may even undermine autonomy by leading to choices that do not reflect patient values, goals, and preferences.
  • Safeguards for advance care planning should be put in place, such as encouraging physicians to err on the side of preserving life when advance care directives are unclear, requiring a trained advisor to review non-emergent patient choices to limit life-sustaining treatment, training of clinicians in conducting such conversations, and structured discussion formats that first address values and goals rather than particular life-sustaining procedures.
  • Key targets for research include: how to improve completion rates for person wanting advance care directives, especially among minorities; more effective and standardized approaches to advance care planning discussions, including how best to present prognostic information to patients; methods for training clinicians and others to assist patients in this process; and systems for assuring that directives are available and up-to-date.
  • [MeSH-major] Advance Care Planning. Decision Making. Terminal Care
  • [MeSH-minor] Advance Directives. Communication. Humans. Life Support Care. Physician-Patient Relations

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  • (PMID = 22237664.001).
  • [ISSN] 1525-1497
  • [Journal-full-title] Journal of general internal medicine
  • [ISO-abbreviation] J Gen Intern Med
  • [Language] eng
  • [Publication-type] Journal Article; Review
  • [Publication-country] United States
  • [Other-IDs] NLM/ PMC3326115
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3. |||||||||. 88%  Lee TJ: Discussing advance care planning with elderly patients. N C Med J; 2014 Sep-Oct;75(5):347-51
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  • [Title] Discussing advance care planning with elderly patients.
  • Advance care planning maximizes the patient's chances of receiving the care he or she wants and minimizes confusion.
  • This article discusses the important components of advance care planning and the recommended documentation.
  • [MeSH-major] Advance Care Planning. Physician-Patient Relations


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4. |||||||||. 89%  Malcomson H, Bisbee S: Perspectives of healthy elders on advance care planning. J Am Acad Nurse Pract; 2009 Jan;21(1):18-23
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Perspectives of healthy elders on advance care planning.
  • PURPOSE: To present a qualitative study that explored the perspectives of healthy elders on advance care planning.
  • CONCLUSIONS: The data reveal five major themes: advance care planning is strongly influenced by concern for others; elders assume that preferences are known to their trusted friends, family, and providers, even in the absence of explicit communication with these people; elders value a healthcare system that supports provider time, focus, and continuity; being "known" to a provider is critical to comfort that advance care planning preferences will be respected; and elders are generally ready and eager to discuss advance care planning.
  • Additional findings include: elders are better prepared for the event of death than the dying process; lawyers and financial planners play a prominent role in guiding elders through end-of-life decisions; and elders believe that the optimal time for advance care planning discussion is during periods of relative wellness.
  • IMPLICATIONS FOR PRACTICE: Enhanced understanding of the patient perspective is key to incorporating advance care planning for healthy elders in the ideal milieu of primary care.
  • [MeSH-major] Advance Care Planning / organization & administration. Aged / psychology. Attitude to Health. Needs Assessment / organization & administration
  • [MeSH-minor] Advance Directive Adherence / psychology. Aged, 80 and over. Communication. Decision Making. Family / psychology. Female. Focus Groups. Friends / psychology. Humans. Interpersonal Relations. Male. Middle Aged. Nursing Methodology Research. Patient Education as Topic. Patient Participation / methods. Patient Participation / psychology. Proxy. Qualitative Research. Questionnaires. Social Support

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  • (PMID = 19125891.001).
  • [ISSN] 1745-7599
  • [Journal-full-title] Journal of the American Academy of Nurse Practitioners
  • [ISO-abbreviation] J Am Acad Nurse Pract
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] United States
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5. ||||||||.. 84%  Yung VY, Walling AM, Min L, Wenger NS, Ganz DA: Documentation of advance care planning for community-dwelling elders. J Palliat Med; 2010 Jul;13(7):861-7
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  • [Title] Documentation of advance care planning for community-dwelling elders.
  • BACKGROUND: Advance planning for end-of-life care has gained acceptance, but actual end-of-life care is often incongruent with patients' previously stated goals.
  • We assessed the flow of advance care planning information from patients to medical records in a community sample of older adults to better understand why advance care planning is not more successful.
  • METHODS: Our study used structured interview and medical record data from community-dwelling older patients in two previous studies: Assessing Care of Vulnerable Elders (ACOVE)-1 (245 patients age > or = 65 years and screened for high risk of death/functional decline in 1998-1999) and ACOVE-2 (566 patients age > or = 75 who screened positive for falls/mobility disorders, incontinence, and/or dementia in 2002-2003).
  • We compared interview data on patients' preferences, advance directives, and surrogate decision-makers with findings from the medical record.
  • RESULTS: In ACOVE-1, 38% of surveyed patients had thought about limiting the aggressiveness of medical care; 24% of surveyed patients stated that they had spoken to their doctor about this.
  • Among patients who reported that they had completed an advance directive and had given it to their health-care provider, 15% (ACOVE-1) and 47% (ACOVE-2) had advance directive information in the medical record.
  • Among patients who had not completed an advance directive but had given surrogate decision-maker information to their provider, 0% (ACOVE-1) and 16% (ACOVE-2) had documentation of a surrogate decision-maker in the medical record.
  • CONCLUSIONS: Community-dwelling elders' preferences for end-of-life care are not consistent with documentation in their medical records.
  • Electronic health records and standardized data collection for end-of-life care could begin to ameliorate this problem.
  • [MeSH-major] Advance Care Planning / standards. Advance Directive Adherence. Documentation / standards. Frail Elderly
  • [MeSH-minor] Aged. Aged, 80 and over. California. Female. Humans. Independent Living. Male. Managed Care Programs. Medical Records. Patient Preference. Quality of Health Care

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  • (PMID = 20618087.001).
  • [ISSN] 1557-7740
  • [Journal-full-title] Journal of palliative medicine
  • [ISO-abbreviation] J Palliat Med
  • [Language] eng
  • [Grant] United States / NIA NIH HHS / AG / K12 AG001004; United States / AHRQ HHS / HS / R21 HS017621-01; United States / BHP HRSA HHS / PE / T32 PE19001
  • [Publication-type] Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, Non-P.H.S.; Research Support, U.S. Gov't, P.H.S.
  • [Publication-country] United States
  • [Other-IDs] NLM/ PMC2939845
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6. |||||||||. 95%  Barwich D, Hoffmann C, Tayler C, Roberts D: International perspectives on advance care planning. BMJ Support Palliat Care; 2011 Jun;1(1):67
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] International perspectives on advance care planning.
  • Fraser Health Authority in British Columbia, Canada serves 1.5 million people, spanning over 12 communities with 26 000 employees and has been a provincial and national leader in advance care planning (ACP) for the past 7 years.
  • Our goal is to continue to promote and enhance ACP across our health system by promoting conversations with patients and families and improving communication and documentation of decision making in all programs of Fraser Health.
  • This presentation will assist learners to gain further understanding of the importance of systematic engagement in order to embed and sustain ACP in large healthcare organizations and to enhance standardized practices for quality patient-centred care at end of life.
  • Input from program areas such Aboriginal Health, Home Health, Primary Care and Medicine as well as discipline areas such as respiratory therapists, social workers and hospitalists have proven invaluable to help shape policy, develop tools and resources and to address educational needs.

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  • (PMID = 24653057.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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7. ||||||||.. 85%  Levi BH, Dellasega C, Whitehead M, Green MJ: What influences individuals to engage in advance care planning? Am J Hosp Palliat Care; 2010 Aug;27(5):306-12
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] What influences individuals to engage in advance care planning?
  • BACKGROUND: Advance care planning (ACP) is an underutilized process that involves thinking about what kind of life-prolonging medical care one would want should the need arise, identifying a spokesperson, and then communicating these wishes.
  • CONCLUSIONS: The motivations for undertaking ACP that we have identified offer health care providers insight into effective strategies for facilitating the process of ACP with their patients.
  • [MeSH-major] Advance Care Planning. Advance Directives / psychology. Attitude to Health. Decision Making. Quality of Life / psychology
  • [MeSH-minor] Activities of Daily Living. Aged. Aged, 80 and over. Anecdotes as Topic. Female. Focus Groups. Humans. Male. Middle Aged. Patient Education as Topic. Pennsylvania. Questionnaires. Self Care / methods

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  • (PMID = 20103783.001).
  • [ISSN] 1938-2715
  • [Journal-full-title] The American journal of hospice & palliative care
  • [ISO-abbreviation] Am J Hosp Palliat Care
  • [Language] eng
  • [Grant] United States / NINR NIH HHS / NR / R21 NR-008539-01; United States / NINR NIH HHS / NR / R21 NR008539
  • [Publication-type] Journal Article; Research Support, N.I.H., Extramural
  • [Publication-country] United States
  • [Other-IDs] NLM/ NIHMS490141; NLM/ PMC3766750
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8. |||||||||. 88%  Cairns R: Advance care planning: thinking ahead to achieve our patients' goals. Br J Community Nurs; 2011 Sep;16(9):427
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning: thinking ahead to achieve our patients' goals.
  • The End of Life Care Strategy for England describes advance care planning (ACP) as a 'voluntary process of discussion about future care...concerns and wishes...values or personal goals for care, their understanding of their illness and prognosis...wishes for types of care or treatment and the availability of these' (Department of Health (DH), 2008).
  • [MeSH-major] Advance Care Planning
  • [MeSH-minor] Community Health Nursing. Great Britain. Humans. Palliative Care

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  • (PMID = 22067950.001).
  • [ISSN] 1462-4753
  • [Journal-full-title] British journal of community nursing
  • [ISO-abbreviation] Br J Community Nurs
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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9. ||||||||.. 85%  Dempsey D: Advance care planning for people with dementia: benefits and challenges. Int J Palliat Nurs; 2013 May;19(5):227-34
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning for people with dementia: benefits and challenges.
  • Advance care planning (ACP) is a process being championed within health and social care, particularly since the publication of the UK Department of Health's 2008 End of Life Care Strategy.
  • However, its implementation in dementia care is yet to be fully realised and can pose significant ethical and legal dilemmas for the generic and specialist workforce, the patient themselves, and their family or loved ones.
  • [MeSH-major] Advance Care Planning. Dementia / therapy. Palliative Care

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  • (PMID = 23971306.001).
  • [ISSN] 1357-6321
  • [Journal-full-title] International journal of palliative nursing
  • [ISO-abbreviation] Int J Palliat Nurs
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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10. ||||||||.. 85%  Wagemans AM, van Wijmen FC: [Advance care planning for people with intellectual disability]. Ned Tijdschr Geneeskd; 2014;158(0):A8433
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] [Advance care planning for people with intellectual disability].
  • [Transliterated title] Advance care planning.
  • A useful aid to proactive medical management is advance care planning.
  • This is a long-term care plan which is centred on the well-being of patients and their quality of life.
  • Ideally it should be a matter for patients and those closest to them, the responsible medical practitioner and those tasked with the day-to-day care of patients.

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  • (PMID = 25424633.001).
  • [ISSN] 1876-8784
  • [Journal-full-title] Nederlands tijdschrift voor geneeskunde
  • [ISO-abbreviation] Ned Tijdschr Geneeskd
  • [Language] dut
  • [Publication-type] English Abstract; Journal Article
  • [Publication-country] Netherlands
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11. |||||||||. 94%  Harrison K, McGee H: Advance care planning in practice. BMJ Support Palliat Care; 2014 Mar;4 Suppl 1:A87
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning in practice.
  • BACKGROUND: Advance Care Planning (ACP) is a voluntary process of discussion about future care between an individual and their care providers and is recommended as best practice in end of life care.
  • This audit was carried out to ascertain what impact this information had on the patients' end of life care.

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  • (PMID = 24645106.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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12. ||||||||.. 85%  Tehan M: Linking human rights with advance care planning. BMJ Support Palliat Care; 2011 Jun;1(1):101
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Linking human rights with advance care planning.
  • There are five Human Rights Standards related to Palliative Care 9Open Society Institute Human Rights Standards (2007)).
  • Are these Human Rights Standards compatible with Advance Care Planning?
  • This presentation will outline the Human Rights Standards related to palliative care and link them to Advance Care Planning.
  • In addition, the presentation will address identifiable, unmet Human Rights needs pertaining to an Advance Care Plan (as per Victoria, Australia).

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  • (PMID = 24653173.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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13. ||||||||.. 84%  Savulescu J: Ethical and effective advance care planning. BMJ Support Palliat Care; 2013 Jun;3(2):241
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Ethical and effective advance care planning.
  • I will outline the principles of ethical and effective advance care planning both for children and adults.
  • I will outline the concept of values-based advance care planning and its relevance to context-specific medical decisions.
  • I will show how people have a de facto right to euthanasia through the advance refusal of feeding and hydration.

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  • (PMID = 24644615.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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14. ||||||||.. 84%  Patel K, Janssen DJ, Curtis JR: Advance care planning in COPD. Respirology; 2012 Jan;17(1):72-8
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning in COPD.
  • The review aims to discuss current concepts in advance care planning (ACP) for patients with COPD, and to provide a narrative review of recent trends in ACP and end-of-life care for patients with COPD.
  • ACP, which involves patient-clinician communication about end-of-life care, can improve outcomes for patients and their families, and may be especially relevant for patients with COPD.
  • It is important for clinicians to understand patients' values and preferences for life-sustaining treatments as well for their site of terminal care.
  • Unfortunately, discussions about ACP and end-of-life care in current practice are scarce, and their quality is often poor.
  • ACP should be implemented alongside curative-restorative care for patients with advanced COPD.
  • The disease course of COPD is such that there will rarely be a clear transition point predicting the timing of the need for initiation of end-of-life care.
  • Future studies should focus on interventions that facilitate concurrent ACP and prepare patients for making in-the-moment decisions, with the goal of improving the quality of end-of-life care.
  • [MeSH-major] Advance Care Planning. Dyspnea / therapy. Palliative Care. Pulmonary Disease, Chronic Obstructive / therapy. Terminal Care

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  • [Copyright] © 2011 The Authors. Respirology © 2011 Asian Pacific Society of Respirology.
  • (PMID = 22008225.001).
  • [ISSN] 1440-1843
  • [Journal-full-title] Respirology (Carlton, Vic.)
  • [ISO-abbreviation] Respirology
  • [Language] eng
  • [Publication-type] Journal Article; Review
  • [Publication-country] Australia
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15. ||||||||.. 83%  Billings J: The need for safeguards in advance care planning. BMJ Support Palliat Care; 2012 Jun 1;2(2):189
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] The need for safeguards in advance care planning.
  • The recent uproar about Medicare "death panels" draws attention to public and professional concerns that advance care planning might restrict access to desired life-sustaining care.
  • The primary goal of advance care planning is to promote the autonomy of a decisionally-incapacitated patient when choices about life-sustaining treatments are encountered.
  • Unfortunately, patients often do not understand their decisions or may change their mind without changing their advance care directives.
  • A few recent reports show encouraging outcomes from advance care planning, but the bulk of studies indicate that the procedure is ineffective in protecting patients from unwanted treatments and may undermine autonomy by leading to choices that do not reflect patient wishes.
  • Safeguards for advance care planning should be put in place, such as requiring clinicians familiar with the patient's prognosis and treatment options to participate in the formulation of directives, assuring regular review of decisions, allowing physicians to err on the side of preserving life when uncertain about the application of an advance care directive, specifying the role of the health care proxy in interpreting or even overriding directives, requiring specialised counselling for non-emergent choices to limit life-sustaining treatment, training and certification of clinicians for conducting such conversations, and use of structured formats, clinical guidelines, and system support aides that promote quality and safety.

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  • (PMID = 24654134.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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16. ||||||||.. 83%  Russell S: It's my life: influences on advance care planning conversations. BMJ Support Palliat Care; 2011 Jun;1(1):78
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] It's my life: influences on advance care planning conversations.
  • The findings indicate participants:(a) Can feel processed through an end of life check list to make decisions where they are given the decisions and then asked to think rather than think and decide. (b) Do not always discuss issues with those closest to them because of a desire to protect them. (c) Are not always willing to make advance care planning decisions not because they are unaware of their illness but because they do not feel resilient to face the emotional impact of their choices as well as being within the advance care planning process of;.
  • CONCLUSION: Health care professionals should value the consideration and discussion part of advance care planning as the vehicle and support mechanism for decision making outcomes.
  • A reductionist, tick box approach to advance care planning can enable participants to feel processed through rather than participating in advance care planning discussions.

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  • (PMID = 24653095.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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17. ||||||||.. 81%  Heckford E, Beringer AJ: Advance care planning: challenges and approaches for pediatricians. J Palliat Med; 2014 Sep;17(9):1049-53
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning: challenges and approaches for pediatricians.
  • BACKGROUND: There is increasing recognition of the value of advance care planning for children with life-limiting conditions.
  • OBJECTIVE: Our aim was to review advance care planning for children with life-threatening or life-limiting conditions (LTLLCs) in our local area.
  • Study subjects were from two National Health Service (NHS) Trusts in Bristol in the United Kingdom.
  • Measurements included quantitative and qualitative review of advance care planning in relation to standards set by The Association for Children's Palliative Care (ACT).
  • In 25% of cases there was no evidence of an advance care plan, and the content and accessibility of those that did exist was variable.
  • Forty-five percent of families were not offered a choice with regard to location of care (LOC) in the last months of life and 50% were not offered a choice about location of death (LOD).
  • CONCLUSIONS: We hope that acknowledgement of some of the challenges, alongside recognition of the clear benefits, of planning will help pediatricians to deliver this important area of care.

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  • (PMID = 24955940.001).
  • [ISSN] 1557-7740
  • [Journal-full-title] Journal of palliative medicine
  • [ISO-abbreviation] J Palliat Med
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] United States
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18. ||||||||.. 81%  McMahan RD, Knight SJ, Fried TR, Sudore RL: Advance care planning beyond advance directives: perspectives from patients and surrogates. J Pain Symptom Manage; 2013 Sep;46(3):355-65
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning beyond advance directives: perspectives from patients and surrogates.
  • CONTEXT: Advance care planning (ACP) has focused on documenting life-sustaining treatment preferences in advance directives (ADs).
  • [MeSH-major] Advance Care Planning / organization & administration. Advance Care Planning / statistics & numerical data. Attitude to Death. Attitude to Health. Decision Making. Patients / statistics & numerical data. Proxy / statistics & numerical data

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  • [Copyright] Published by Elsevier Inc.
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  • (PMID = 23200188.001).
  • [ISSN] 1873-6513
  • [Journal-full-title] Journal of pain and symptom management
  • [ISO-abbreviation] J Pain Symptom Manage
  • [Language] eng
  • [Grant] United States / NIA NIH HHS / AG / P30 AG044281
  • [Publication-type] Journal Article; Multicenter Study; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, Non-P.H.S.
  • [Publication-country] United States
  • [Other-IDs] NLM/ NIHMS591675; NLM/ PMC4111444
  • [Keywords] NOTNLM ; Advance directives / aging / decision making / qualitative research
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19. ||||||||.. 81%  Russell S, Fowler C: Bedfordshire and hertfordshire advance care planning educational model. BMJ Support Palliat Care; 2011 Jun;1(1):85
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Bedfordshire and hertfordshire advance care planning educational model.
  • The model(1) responds to the challenges of implementing guidance on advance care planning using levels of education need, and the EoLC workforce levels.
  • Guidance alone is not able to embed the advance care planning process in practice.
  • A blended learning approach includes face to face learning, e-learning using the National e-learning modules and the East of England EoLC care home education project The model(1) is part of implementation guidance, including: communication, information transfer, documentation, process and a competency based learning framework, so that learning is part of a wider learning experience in End of Life Care.

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  • (PMID = 24653117.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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20. ||||||||.. 81%  Corke C: Personal values profiling and advance care planning. BMJ Support Palliat Care; 2013 Jun;3(2):226
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Personal values profiling and advance care planning.
  • This makes Advance Care Planning a challenge.
  • This finding also suggests that Advance Care Planning is required for a large proportion of the population.
  • The utility of Personal Values Profile report to directly assist medical decision making, or to facilitate formal Advance Care Planning, remains to be demonstrated.

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  • (PMID = 24644577.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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21. ||||||||.. 80%  Brooke J, Kirk M: Advance care planning for people living with dementia. Br J Community Nurs; 2014 Oct 2;19(10):490-5
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning for people living with dementia.
  • The prevalence of dementia is increasing, however it is only recently that dementia has been recognised as a terminal disease where end-of-life care needs to be discussed and planned with the patient and their family.
  • Early diagnosis of dementia enables the person with dementia and their family to discuss the future, including plans for end-of-life care such as Advance Care Planning (ACP).
  • However, discussions regarding end-of-life care are not routine practice for people with dementia and their families.

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  • (PMID = 25284185.001).
  • [ISSN] 1462-4753
  • [Journal-full-title] British journal of community nursing
  • [ISO-abbreviation] Br J Community Nurs
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
  • [Keywords] NOTNLM ; Advance care planning / Dementia / End-of-life care
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22. ||||||||.. 80%  Robins-Browne K, Palmer V, Komesaroff P: An unequivocal good? Acknowledging the complexities of advance care planning. Intern Med J; 2014 Oct;44(10):957-60
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] An unequivocal good? Acknowledging the complexities of advance care planning.
  • Over the past few decades advance care planning (ACP) has become the subject of debate, research and legislation in many countries.
  • Encouraging people to express their preference for treatment in advance, ideally in written form, seems a natural way to identify what someone might have wanted when they can no longer participate in decision-making.
  • For example, ACP is now actively encouraged in Australian federal and state government policies and the Victorian Government has recently published a practical ACP strategy for Victorian health services (2014-2018).
  • However, advance care plan is ethically complex and the introduction of the Victorian health services strategy provides an opportunity to reflect on this complexity, particularly on the benefits and risks of ACP.

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  • [Copyright] © 2014 The Authors; Internal Medicine Journal © 2014 Royal Australasian College of Physicians.
  • (PMID = 25302719.001).
  • [ISSN] 1445-5994
  • [Journal-full-title] Internal medicine journal
  • [ISO-abbreviation] Intern Med J
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] Australia
  • [Keywords] NOTNLM ; advance care planning / advance directive / ethical aspects / ethics
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23. ||||||||.. 80%  Samara J, Larkin D, Chan CW, Lopez V: Advance care planning in the oncology settings. Int J Evid Based Healthc; 2013 Jun;11(2):110-4
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning in the oncology settings.
  • BACKGROUND: Self-determination and patient choice of end-of-life care are emphasised in palliative care.
  • Advance care planning (ACP) is an approach to enabling patients' choices.
  • Little is known about oncology care nurses' views and the barriers they face in the implementation of ACP.
  • OBJECTIVE: The aims of this study were to assess the uptake of ACP by health professionals and explore nurses' perceived barriers for implementing ACP.
  • [MeSH-major] Advance Care Planning / standards. Attitude of Health Personnel. Medical Oncology / education. Oncology Nursing / education. Palliative Care / standards. Terminal Care / standards

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  • [Copyright] © 2013 The Authors. International Journal of Evidence-Based Healthcare © 2013 The Joanna Briggs Institute.
  • (PMID = 23750573.001).
  • [ISSN] 1744-1609
  • [Journal-full-title] International journal of evidence-based healthcare
  • [ISO-abbreviation] Int J Evid Based Healthc
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] Australia
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24. ||||||||.. 80%  Silvester W: Evolution of advance care planning in Australia - launching the new international advance care planning and end of life care society. BMJ Support Palliat Care; 2011 Jun;1(1):66
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Evolution of advance care planning in Australia - launching the new international advance care planning and end of life care society.
  • Although there were small areas of interest in advance care planning (ACP) and the ability to refuse treatment in Australia as early as 1987, the implementation of and research in, ACP began in 2002 with Australian Federal government and Victorian State government funding of the Respecting Patient Choices Program.
  • This program has been established in many hospitals, health services and aged care homes throughout Australia and has been adapted successfully to local conditions and legislation.
  • With the growing public and political interest in ACP a number of new initiatives have been undertaken including:▸ new supportive legislation in several states and territories ▸ a National government sponsored review of existing legislation with recommendations for achieving national uniformity ▸ recommendations in the Australian National Health & Hospitals Reform Commission Report that ACP should be available in all aged care homes.
  • The holding of the Inaugural International ACP conference in Melbourne in April 2010 galvanised interest and support for ACP in Australia and raised awareness internationally, leading to the establishment of International Society of Advance Care Planning and End of Life Care -ACPEL Society with hundreds of members joining from around the world.

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  • (PMID = 24653055.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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25. ||||||||.. 80%  McGee A: Advance care planning for dementia patients. BMJ Support Palliat Care; 2013 Jun;3(2):237-8
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning for dementia patients.
  • BACKGROUND: There is currently some debate about the extent to which advance decisions, advance statements of wishes and preferences, or other forms of advanced care planning should be followed when they are undertaken by a patient who subsequently loses capacity.
  • Two main arguments commonly advanced to support the claim that these forms of advanced planning are problematic are: (a) the person who loses capacity is not the same person as the one who had capacity; and (b) the person retains certain autonomy in addition to welfare interests and so cannot be bound by priorly taken decisions or expressed wishes.
  • Nonetheless, this has implications for how we ought to draw up an advance decision that is to be legally binding, and for whether we ought to consider alternative forms of advance care planning.
  • METHODS: Conceptual analysis of arguments (a) and (b), with some reference to the relevance of a recent English case to advance statements of wishes and preferences.
  • RESULTS: The paper concludes that argument (a) can be rejected, but that argument (b) is sound and has implications for the forms of advance care planning we ought to adopt in the case of dementia patients, and for the shape that current advance decisions now take.
  • CONCLUSION: The form of proxy decision making proposed in the Nuffield Dementia Report 2009 is the best way of solving the dilemma and might be preferable to legally binding advance decisions.

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  • (PMID = 24644608.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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26. ||||||||.. 80%  Lotz JD, Jox RJ, Borasio GD, Führer M: Advance care planning in paediatrics: the care providers' perspective. BMJ Support Palliat Care; 2013 Jun;3(2):265
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning in paediatrics: the care providers' perspective.
  • BACKGROUND: Research on advance care planning (ACP) has focused on adults, but ACP is also being practiced in pediatrics (pACP).
  • Health care providers may have to deal with unknown diagnoses and prognoses, patients without decision making capacity and a complex social network.
  • METHODS: We conducted 17 semi-structured interviews with experts in the care of severely ill children and adolescents.
  • RESULTS: Pediatric ACP concerns all care providers.
  • Particularly important issues are: An interdisciplinary care conference, repeated discussions with the parents, a continuous point of contact as well as emergency planning.
  • Advance directives (AD) should be individualised, validated by the treating physician (shared decision making) and be available.
  • There is a need for pACP, but the perspectives differ between care providers.
  • CONCLUSION: This study helps in understanding the needs of the different care providers as well as barriers to pACP.

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  • (PMID = 24644675.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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27. ||||||||.. 80%  Sives D, McKeown A, Raeside D: Introducing advance care planning in patients with advanced COPD. BMJ Support Palliat Care; 2011 Jun;1(1):107
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Introducing advance care planning in patients with advanced COPD.
  • BACKGROUND: Advance care planning has become government policy in Scotland and England, and many health professionals are being trained to do it for all patients with advanced life-limiting disease.
  • FINDINGS: We introduced structured ACP into routine out-patient practice and the use of an aide memoire was positively received by health professionals working in the clinic.
  • Patients with advanced COPD focused on planning to remain well and rarely had considered end of life planning.
  • Patients with advanced COPD rarely consider eolc planning preferring instead to focus on living with and managing their illness and this may prove to be a significant barrier to the facilitation of ACP.

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  • (PMID = 24653198.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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28. ||||||||.. 80%  Miura H, Nishikawa M, Hong Y, Nakashima K: Challenge of introducing advance care planning policy into Japan. BMJ Support Palliat Care; 2012 Jun 1;2(2):203
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Challenge of introducing advance care planning policy into Japan.
  • In Japan, living wills and advance directives are not commonly used, and there is no system or law to support the decision making of patients.
  • To introduce advance care planning policy into Japan, in consideration for law and ethic related to domestic end-of-life care, we compared law and ethic of Victoria, Australia with Japan.
  • Whereas, in Japan, there are general guideline for end-of-life care and one of common law, but no law and guideline to mention concrete procedure.
  • Via these activities, we want to help the globalisation of law and ethic in Japanese end-of-life care.

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  • (PMID = 24654185.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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29. ||||||||.. 80%  Boot M: What challenges do CNSs experience when facilitating advance care planning? BMJ Support Palliat Care; 2011 Jun;1(1):105
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] What challenges do CNSs experience when facilitating advance care planning?
  • The findings of a qualitative descriptive study, which sort to gain insight into the challenges that Clinical Nurse Specialists experienced when facilitating advance care planning (ACP) will be presented.
  • METHOD: The study used semi-structured interviews, gathering data from purposeful sampling of 8 community palliative care CNSs.
  • CONTRIBUTION TO THE EVIDENCE: This work adds to the evidence on ACPs and the experience of CNSs working in palliative care.

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  • (PMID = 24653188.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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30. ||||||||.. 80%  Robinson C: Rethinking the ethical foundation of advance care planning. BMJ Support Palliat Care; 2011 Jun;1(1):83-4
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Rethinking the ethical foundation of advance care planning.
  • RESEARCH AIMS: This interpretive descriptive study was designed to explore the process of advance care planning (ACP).
  • Further, the importance of family involvement in all aspects of end-of-life care has been widely acknowledged.

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  • (PMID = 24653113.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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31. ||||||||.. 80%  Krones T, Biller Andorno N, In der Schmitten J, Mitchell C, Spirig R, Zaugg K: Shared decision making and advance care planning-underpinnings, similarities and differences. BMJ Support Palliat Care; 2012 Jun 1;2(2):173
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Shared decision making and advance care planning-underpinnings, similarities and differences.
  • There are two movements, each rooted in bioethics and evidence-based medicine, that focus on quite similar aims yet are not fully aligned and integrated in the clinical care of dying patients: The first, "advance care planning" focusses on future decisions when one becomes incapable of decision making, and the second, "shared decision making" has led to decision aids designed on the basis of empirical evidence to solicit and support patients' choices and decisions.
  • The aim of our study, beginning in 2012, is to develop, implement and test a complex intervention (continuous multi-professional development - CPD program) for improving patients' preparation for and participation in end of life decisions including both strategies ACP and SDM/DA on end of life issues in an acute care hospital setting.
  • The SDM philosophy relies more on giving tailored statistical information on distinct measures whereas ACP relies more on defining broader goals of care, which might indicate not only different contents but also differing concepts of autonomy.
  • For example, both investigate impact on satisfaction with care and economy.
  • SDM focuses more on knowledge and decisional conflict whereas ACP focuses on numbers of advance directives (ADs), and decisions made according to wishes.

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  • (PMID = 24654071.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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32. ||||||||.. 80%  Kelly C, Maloney MA, Smith L, Puls K, Spillane V, Sutton E, Silvester W: Expanded faqs on advance care planning: driven by the community. BMJ Support Palliat Care; 2013 Jun;3(2):251-2
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Expanded faqs on advance care planning: driven by the community.
  • BACKGROUND: In March 2011, Respecting Patient Choices at Austin Health established a Volunteers Program to provide education to community groups about Advance Care Planning (ACP).

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  • (PMID = 24644643.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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33. ||||||||.. 79%  Hammes BJ, Briggs LA: Using stages of planning to improve the success of advance care planning. BMJ Support Palliat Care; 2011 Jun;1(1):76
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Using stages of planning to improve the success of advance care planning.
  • What we mean by 'advance directives', in the United States has been largely determined by the creation of laws and regulations.
  • The unintended consequence of this approach has been the creation of advance directives as one-time, singular events intended to be effective for all individuals regardless of age, stage of health, or changing goals and values.
  • Advance care planning (ACP) as a process of communication has emerged as an alternative to this failed approach.
  • Rather, ACP is more effective when it is focused on the individual's stage of health and the realistic decisions that may be needed for that stage.
  • This staged approach to planning includes person-centred interactions and shared decision-making with professionals who are well trained in a standardized approach.
  • In this presentation the speaker will discuss the advantages of one approach to the stages of planning, described as First (ie, basic ACP for the healthy adult), Next (ie, disease-specific ACP for progressive chronic illness with complications), and Last Steps (ie, those expected to die in the next 12 months).
  • This stage of planning approach makes it possible to identify the content of planning relevant for the person at each stage, when to do it, how to document it and how to train professionals to competently assist in the planning process.
  • Quality improvement activities can be specifically designed to evaluate if the goals of planning are achieved.
  • This staged approach to planning is individualized and realistic.
  • It builds care planning into the routines of care, enhances person-centred decision-making and provides a system for reviewing and updating plans over time.

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  • (PMID = 24653088.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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34. ||||||||.. 79%  Ashton M, Cantillo M: The implementation of advance care planning at Hawaii Pacific Health. BMJ Support Palliat Care; 2012 Jun 1;2(2):195
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] The implementation of advance care planning at Hawaii Pacific Health.
  • We adopted the Respecting Choices program and provided Advance Care Planning training to appropriate staff at each of our 4 hospitals.
  • We also invited participation from long term care facilities that receive and send us patients.
  • At the same time, we worked to ensure that ACP documents are immediately available in our electronic medical record, so that as patients access care, we are able to reliably view their documents.

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  • (PMID = 24654157.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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35. ||||||||.. 79%  Mann J, Neale D: Advance care planning in general practice. BMJ Support Palliat Care; 2011 Jun;1(1):88
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning in general practice.
  • Barwon Health's (BH) Respecting Patient Choices (RPC) program together with the local General Practitioner's (GP) Association and two GP developed a project plan to implement a model of advance care planning (ACP) into General Practice over a 6-month period.
  • However, the provision of appropriate care for patients and the ripple effect for future savings in the acute sector has the potential to demonstrate overall benefits.

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  • (PMID = 24653129.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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36. ||||||||.. 79%  Crump S: African American seniors' perspectives on advance care planning. BMJ Support Palliat Care; 2012 Jun 1;2(2):195-6
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] African American seniors' perspectives on advance care planning.
  • African-Americans are less likely to write advance directives than white Americans.
  • Little is known about African-Americans' perceptions of planning for who would speak for them if they were unable to speak for themselves.
  • Health professionals' lack of knowledge about culture, ethnicity and/or religion is an obstacle to effective end-of-life care.
  • Study participants connected deterioration of the African-American community and family to ongoing discrimination and racism and cited this as contributing to the reluctance to write advance directives.
  • Another major finding is that choosing a proxy decision-maker requires "analysing personal relationships" and this can be painful and cause avoidance of addressing advance care planning.

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  • (PMID = 24654159.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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37. ||||||||.. 79%  Sives D, Cornbleet MA, Murray S: Introducing advance care planning in community palliative care. BMJ Support Palliat Care; 2011 Jun;1(1):69
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Introducing advance care planning in community palliative care.
  • AIM: To design and introduce for all patients referred to a hospice community team an intervention that facilitates advance care planning (ACP), and to evaluate the feasibility and utility of this innovation.
  • A fear of dying and the patient perception of who should undertake ACP emerged as important patient barriers while there are specific challenges to care planning in patients with organ failure and the frail elderly with cancer.
  • CONCLUSIONS: Facilitated ACP with prompts proved less useful for initiating conversation for CNS in palliative care.
  • However the introduction of structured documentation improved the recording and communication of care preferences.

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  • (PMID = 24653065.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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38. ||||||||.. 79%  Judez J, Vivancos L, Antunez C, Quesada M, Novoa A, Feito L, Ogando B: Advance care planning in life limiting illness. BMJ Support Palliat Care; 2011 Jun;1(1):68
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning in life limiting illness.
  • In the Spanish advance care planning (ACP) Program 'KAYRÓS- Helping Conversations', inspired in Respecting Choices philosophy, we developed an innovative cluster research, NEURO-KAYRÓS, applied to two neurodegenerative diseases with contrasting trajectories: early Alzheimer's Disease (AD)-grant research project for clinical research ACP implementation in dyads (patient-surrogate)- and Amyotrophic Lateral Sclerosis (ALS)- stem cell non-commercial research grant clinical trial with clinical psychology follow-up.
  • We monitor the ACP dyadic (patient-surrogate) interview with tools, combining quantitative with qualitative approaches, that allow us to gain insight in the process of living (and planning) with a threatening neurodegenerative illness/hoping for the best/preparing for the worst.

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  • (PMID = 24653062.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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39. ||||||||.. 79%  Kraft J: Injecting social technology into advance care planning. BMJ Support Palliat Care; 2012 Jun 1;2(2):199
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Injecting social technology into advance care planning.
  • Communication and conversation among an individual, loved ones and a health care provider are essential to effective advance care planning (ACP).
  • In emergencies, health professionals can immediately gain access to wishes made available by the patient.

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  • (PMID = 24654171.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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40. ||||||||.. 79%  Chester H, Johnson S, Jones S: Advance care planning documentation adopted county-wide. BMJ Support Palliat Care; 2011 Sep;1(2):259-60
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning documentation adopted county-wide.
  • INTRODUCTION: The process of advance care planning is a vital and integral part of our practice.
  • AIMS: ▸ To develop an Advance Decision and Advance Statement form with guidelines for health and social care professionals.
  • The forms and guidelines were then subject to review in all care settings, including trust resuscitation committees and solicitor.
  • One patient died in his preferred place of care as a direct consequence.
  • CONCLUSION: Introducing the forms across all settings, accompanied by education and training, aims to raise the profile of advance care planning and improve exchange of information so that professionals in all settings are aware of a patient's documented wishes for end of life care.

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  • (PMID = 24653424.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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41. ||||||||.. 78%  Silvester W, Mawren D, Detering K, Wallis K: The impact of advance care planning for renal patients. BMJ Support Palliat Care; 2013 Jun;3(2):246-7
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] The impact of advance care planning for renal patients.
  • BACKGROUND: Research indicates that renal patients are uninformed about care options and have limited knowledge about illness prognosis and trajectories.
  • Accordingly, facilitated Advance Care Planning (ACP) was introduced to the renal unit at the Austin Hospital in 2010.

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  • (PMID = 24644630.001).
  • [ISSN] 2045-4368
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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42. |||||||... 74%  Holley JL: Advance care planning in CKD/ESRD: an evolving process. Clin J Am Soc Nephrol; 2012 Jun;7(6):1033-8
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning in CKD/ESRD: an evolving process.
  • Advance care planning was historically considered to be simply the completion of a proxy (health care surrogate designation) or instruction (living will) directive that resulted from a conversation between a patient and his or her physician.
  • We now know that advance care planning is a much more comprehensive and dynamic patient-centered process used by patients and families to strengthen relationships, achieve control over medical care, prepare for death, and clarify goals of care.
  • Some advance directives, notably designated health care proxy documents, remain appropriate expressions of advance care planning.
  • Moreover, although physician orders, such as do-not-resuscitate orders and Physician Orders for Life-Sustaining Treatment, may not be strictly defined as advance directives, their completion, when appropriate, is an integral component of advance care planning.
  • The changing health circumstances and illness trajectory characteristic of ESRD mandate that advance care planning discussions adapt to a patient's situation and therefore must be readdressed at appropriate times and intervals.
  • The options of withholding and withdrawing dialysis add ESRD-specific issues to advance care planning in this population and are events each nephrologist will at some time confront.
  • Advance care planning is important throughout the spectrum of ESRD and is a part of nephrology practice that can be rewarding to nephrologists and beneficial to patients and their families.
  • [MeSH-major] Advance Care Planning. Kidney Failure, Chronic / therapy. Quality of Life. Renal Dialysis
  • [MeSH-minor] Advance Directives. Communication. Disease Progression. Family Relations. Humans. Physician-Patient Relations. Professional-Family Relations. Prognosis. Proxy. Resuscitation Orders. Third-Party Consent. Time Factors. Treatment Refusal. Withholding Treatment

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  • (PMID = 22461536.001).
  • [ISSN] 1555-905X
  • [Journal-full-title] Clinical journal of the American Society of Nephrology : CJASN
  • [ISO-abbreviation] Clin J Am Soc Nephrol
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] United States
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43. |||||||... 74%  Janssen DJ, Engelberg RA, Wouters EF, Curtis JR: Advance care planning for patients with COPD: past, present and future. Patient Educ Couns; 2012 Jan;86(1):19-24
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning for patients with COPD: past, present and future.
  • OBJECTIVE: To discuss the importance, current status and directions for improvement of advance care planning and communication about end-of-life care for patients with Chronic Obstructive Pulmonary Disease (COPD).
  • METHODS: Narrative review of the currently available literature regarding advance care planning and communication about end-of-life care in COPD.
  • RESULTS: Advance care planning, including patient-clinician communication about end-of-life care, can improve outcomes for patients and their families and may be particularly important for patients with COPD.
  • Despite these advantages, advance care planning and conversations about end-of-life care in current practice are limited and their quality is often poor.
  • CONCLUSION: Advance care planning can improve outcomes for patients and their relatives.
  • Recent studies provide directions for how to facilitate advance care planning for patients with COPD.
  • PRACTICE IMPLICATIONS: Advance care planning ought to be part of care for patients with advanced COPD.
  • Future studies should focus on interventions to facilitate advance care planning in patients with COPD with the goal of improving the quality of end-of-life care.
  • [MeSH-major] Advance Care Planning. Communication. Decision Making. Personal Autonomy. Physician-Patient Relations. Pulmonary Disease, Chronic Obstructive / psychology
  • [MeSH-minor] Humans. Patient Care Team. Patient Satisfaction. Prognosis


44. |||||||... 74%  Jeong SY, Higgins I, McMillan M: The essentials of Advance Care Planning for end-of-life care for older people. J Clin Nurs; 2010 Feb;19(3-4):389-97
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] The essentials of Advance Care Planning for end-of-life care for older people.
  • AIMS AND OBJECTIVES: The aim of the study was to investigate the phenomenon of Advance Care Planning and the use of Advance Care Directives in residential aged care facilities in Australia.
  • The objectives were to: investigate the implementation process of Advance Care Planning and the use of Advance Care Directives; investigate the outcomes of Advance Care Planning and experiences of people involved in Advance Care Planning and Advance Care Directives, including residents, families and nursing staff.
  • BACKGROUND: Benefits of Advance Care Planning for older residents are considerable given their degenerative health-breakdown and minimal chance of recovery.
  • To date, the use of Advance Care Planning and Advance Care Directives is limited and models of service delivery and processes are needed to enhance best practice with Advance Care Planning and positive outcomes for older Australians.
  • METHODS: The study conducted using multiple sources of evidence to enrich understanding of the phenomenon of Advance Care Planning.
  • The findings contribute to the limited knowledge of options currently available to older adults and their families in their decision-making about end-of-life care options.
  • PERMISSION TO CONDUCT THE STUDY: Prior to commencement of the data collection, ethics clearances from the University of Newcastle and the regional Area Health Service were achieved.
  • Permission to access the residential aged care facilities to undertake the study was obtained from the relevant residential aged care facility ethics committees or designated authorities.
  • RESULTS: The research identified the components and factors involved in the Advance Care Planning process and in attaining desired outcomes.
  • The conceptual framework developed elaborates how Advance Care Planning should be implemented and what may constitute successful implementation of Advance Care Planning in residential aged care facilities.
  • The four main elements (input, throughput, output, feedback), and 20 sub-elements were requisites for nurses to initiate and implement the Advance Care Planning.
  • CONCLUSION: The essential components for end-of-life care are identified in the implementation processes of Advance Care Planning in residential aged care facilities.
  • RELEVANCE TO CLINICAL PRACTICE: The case study identified four determinative requisites for successful implementation of Advance Care Planning in aged care facilities: the expert nurse, discussion, education and involvement of a multidisciplinary team.
  • Nurses should take these factors into account and use person-centred approach in formalised processes to encourage participation in plans for end-of-life care.
  • [MeSH-major] Advance Directives. Planning Techniques. Terminal Care

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  • (PMID = 20500278.001).
  • [ISSN] 1365-2702
  • [Journal-full-title] Journal of clinical nursing
  • [ISO-abbreviation] J Clin Nurs
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] England
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45. |||||||... 73%  Randall F: Advance care planning: ethical and clinical implications for hospital medicine. Br J Hosp Med (Lond); 2011 Aug;72(8):437-40
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Advance care planning: ethical and clinical implications for hospital medicine.
  • Advance care planning takes place 'in advance of' anticipated loss of capacity with the aim of informing the best interests judgments required when capacity is later lost.
  • It is an ethically and clinically distinct subset of general care planning.
  • [MeSH-major] Advance Care Planning / ethics. Hospitals
  • [MeSH-minor] Advance Directives. Decision Making. Humans. Planning Techniques

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  • (PMID = 21841587.001).
  • [ISSN] 1750-8460
  • [Journal-full-title] British journal of hospital medicine (London, England : 2005)
  • [ISO-abbreviation] Br J Hosp Med (Lond)
  • [Language] eng
  • [Publication-type] Journal Article; Review
  • [Publication-country] England
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46. |||||||... 73%  Bloomer M, Tan H, Lee S: End of life care--the importance of advance care planning. Aust Fam Physician; 2010 Oct;39(10):734-7
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] End of life care--the importance of advance care planning.
  • BACKGROUND: Communication about end of life care may involve difficult conversations for patients, family members and health professionals.
  • However, a lack of understanding of a person's wishes about their future care may result in a loss of dignity for the person, and additional distress for their family members and health professionals and burden to the healthcare system.
  • OBJECTIVE: This article discusses the barriers to advance care planning and provides some guidance for the general practitioner in undertaking advance care planning with patients and their families.
  • Tips for initiating end of life discussions with patients and families utilising the 'PREPARED' acronym, and ensuring appropriate care delivery are included.
  • DISCUSSION: Involving patients and their family members in advance care planning may be challenging and time consuming for GPs.
  • [MeSH-major] Advance Care Planning. Terminal Care
  • [MeSH-minor] Aging. Attitude to Death. Australia. Humans. Palliative Care. Physician-Patient Relations

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  • (PMID = 20890474.001).
  • [ISSN] 0300-8495
  • [Journal-full-title] Australian family physician
  • [ISO-abbreviation] Aust Fam Physician
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] Australia
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47. |||||||... 73%  Motley M: Improving patient-centered care through advance care planning. JAAPA; 2013 Jun;26(6):38-43
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Improving patient-centered care through advance care planning.
  • Advance care planning is crucial for patients confronting incurable, debilitating, or terminal disease.
  • Discussing end-of-life issues can reduce overtreatment and undertreatment as defined by the patient, and improve satisfaction with care.
  • [MeSH-major] Advance Directives. Patient-Centered Care / standards. Quality Improvement

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  • (PMID = 23805592.001).
  • [ISSN] 1547-1896
  • [Journal-full-title] JAAPA : official journal of the American Academy of Physician Assistants
  • [ISO-abbreviation] JAAPA
  • [Language] eng
  • [Publication-type] Journal Article; Review
  • [Publication-country] United States
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48. |||||||... 73%  Schyvens M: The legal status of guardians in advance care planning in Australia. BMJ Support Palliat Care; 2011 Jun;1(1):82
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] The legal status of guardians in advance care planning in Australia.
  • Australia, like many countries, is currently debating the optimum means of permitting individuals to engage in advance care planning within the confines of our respective legal systems.
  • This convention is an important consideration for our legal systems in developing means of validating people's advance care planning wishes.
  • It also brings with it great challenges for guardians as substitute decision makers when called upon to engage in advance care planning.
  • These themes will be the focus of a presentation outlining:▸ Current recognition status of advance care planning in Australian jurisdictions; ▸ The debate for the need for new legislation in Australia to give recognition and framework to advance care planning; ▸ The challenges facing appointed guardians called upon to engage in advance care planning, the limitations on their authority and the impact of the UN Convention; and ▸ The importance of developing uniform language when engaging in advance care planning to enhance legal validity and community acceptance - an examination of the current development of an Australian national framework for advance care planning.

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  • (PMID = 24653107.001).
  • [ISSN] 2045-435X
  • [Journal-full-title] BMJ supportive & palliative care
  • [ISO-abbreviation] BMJ Support Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article
  • [Publication-country] England
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49. |||||||... 72%  Jeong SY, Higgins I, tMcMillan M: Experiences with advance care planning: older people and family members' perspective. Int J Older People Nurs; 2011 Sep;6(3):176-86
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Experiences with advance care planning: older people and family members' perspective.
  • AIMS AND OBJECTIVES: The aim of this study is to report the findings of a case study that explored the phenomenon of advance care planning and advanced care directives in residential care settings in Australia.
  • BACKGROUND: Understanding the phenomenon of advance care planning and advanced care directives is vital to end of life decision making.
  • There are few studies that report the experiences of older people and family members in relation to advance care planning and advanced care directives.
  • FINDINGS: The participants' early experiences with advance care planning were expressed in unpleasant, hostile and negative ways.
  • Advance care planning led to a different level of appreciation of personal entity and transcendence.
  • However, advance care planning demands concerted action and support by everyone involved.
  • [MeSH-major] Advance Directives / psychology. Aging / psychology. Family / psychology. Geriatric Nursing / methods. Nursing Staff / psychology. Residential Facilities / organization & administration
  • [MeSH-minor] Adult. Aged. Attitude to Health. Australia. Female. Hostility. Humans. Male. Middle Aged. Multiple Sclerosis / nursing. Multiple Sclerosis / psychology. Nurse-Patient Relations. Nursing Methodology Research. Organizational Case Studies. Social Support. Terminal Care / organization & administration. Terminal Care / psychology


50. |||||||... 72%  Black K: Promoting advance care planning through the National Healthcare Decisions Day initiative. J Soc Work End Life Palliat Care; 2010;6(1-2):11-26
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  • [Source] The source of this record is MEDLINE®, a database of the U.S. National Library of Medicine.
  • [Title] Promoting advance care planning through the National Healthcare Decisions Day initiative.
  • National Healthcare Decisions Day is a nationwide campaign aimed at increasing advance care planning among adults throughout the country.
  • This broad-scale initiative simultaneously seeks to encourage Americans to express their wishes regarding future healthcare decision making, rally a national media campaign to promote the importance of planning in advance for care, and mobilize national, state, and community organizations to develop a wide range of educational activities.
  • The movement culminates in an annual day of multiple events throughout the country designed to inundate the public about advance care planning.
  • The national event originated from the successful statewide Virginia Advance Directives Day's inaugural event, conducted on April 18, 2006.
  • [MeSH-major] Advance Care Planning. Health Promotion
  • [MeSH-minor] Advance Directives. Humans. Planning Techniques. Program Evaluation. Social Work. United States

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  • (PMID = 20544475.001).
  • [ISSN] 1552-4264
  • [Journal-full-title] Journal of social work in end-of-life & palliative care
  • [ISO-abbreviation] J Soc Work End Life Palliat Care
  • [Language] eng
  • [Publication-type] Journal Article; Research Support, Non-U.S. Gov't
  • [Publication-country] England
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